Rare Ovarian Cancer, looking for others…

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I was recently diagnosed with rare form of ovarian cancer called a Sertoli-Leydig Cell Tumour which accounts for less than 0.5% of all malignant tumours. I am eager to find more information or maybe other patients like me. It’s the first case for my Gynaecologist & Oncologist so their knowledge and experience is limited, which increases my worry-meter. Any insight or familiar situations would be hugely appreciated.

Anonymous
  • Hi DezzyM

    I'm sorry to read of your diagnosis. You may get responses to your questions if you join and post in the ovarian cancer forum. Hopefully you will find others that have the same cancer type, and can share their insights and experience.

    If you have difficulty negotiating the site, ask for help!

    I hope your gynae and oncologist have a good treatment plan soon.

    Best wishes

    Kate

  • Hi Kate

    I’ve replied to this post in the ovarian group and mentioned Ovacome as a good resource to check. As it’s rare, there might not be many others who have the same, but Ovacome also has an online forum and good resources.

    Sarah xx