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Macmillan’s website will undergo planned maintenance from Monday 1 Dec at 10:30pm to Tuesday 2 Dec at 9am. During this time, the Community will be partly unavailable. Members won’t be able to log in or join, but you will still be able to read posts and discussions.
Cycle 5 being done today (25/09/24).
Unfortunately Cycle 4 has been significantly worse, due to cumulative effects which are widely experienced - and other than mouth problems all others have persisted through the full duration of the Cycle.
Notable observations are:
NEW - SHORTNESS OF BREATH - first noticed slight on day 5 but gradually became worse and by day 10 was intrusive walking up slopes. By day 15 a dry cough developed and any activity other than a steady walk on the level caused heavier breathing. Consultant said in review on day 16 this was to be expected and consequent decline in excercise compounds it - as well as fatigue (see below). Sent for chest X ray (partly due to my lung cancer treatment 10 years ago). Day 21 and I still don't know the result - no news is good news but it does no good for my anxiety level and I'll try to find out at chemo visit today.
MOUTH - became sore again but was supplied with mouthwashes in advance so started using these before the worst symptoms appeared which had it cleared in 6 days. Will ask for same suppiles again today.
FATIGUE - much worse, started day 3 and became worse as time progressed. On day 17 I cut my grass and for the first time ever had to stop half way through each lawn for a rest. Now even walking an the leveI is very tiring. Again, a vicious circle because activity helps fatigue but also causes it so is very difficult! Just need to keep trying to push as far as possible. I hate being inactive!
HANDS - same as last time.
WEIGHT - 3lbs lighter day 21 as on day 1. I'm pleased because exercise activity has declined significantly but I've maintained a very healthy diet as well as losing appetite on a few down days but probably offset by a few comforting G&Ts, beers and glasses of red (in moderation of course!).
EYES - remained watery throughout and becoming a real nuisance when outdoors, especially with temperatures dropping a little and generally breezier
HAIR - very thin but there's still some left. Definitely need a hat on these chillier mornings / evenings and dull / breezy days.
OVERALL - cycle 4 has much more difficult due to more intense and longer lasting side effects than 1 to 3. I'm quite nervous to see what Cycle 5 brings.
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