Not ready for Liver opp

Less than one minute read time.
I started my 7th chemo today after i said no to surgery. Dr wants to do colon first, then I must recover, then 2 or 3 opps on liver. I dont know what to do. Anybody who would like to give me advice please.
Anonymous
  • FormerMember
    FormerMember

    Hello Porchiajeff,

    I'm not sure what you are asking but I have bowel cancer with secondaries in liver and lung. My treatment plan is 4 cycles of chemo -done-scan -done today. Now I have to wait to see what the chemo has done.The bowel op is supposed to happen next but depending on whether the liver secondaries have shrunk, it will be bowel only or bowel and liver op together or bowel op then RFA treatment on liver.I don't understand why you should have 2 or 3 ops on your liver, did the doc say why? And why have you said no to surgery?Are you scared? I am terrified and have had torrid times trying to do the chemo but I got through it and you have done 7!!

    Whereabouts are you? I am in London.

    Keep in touch

    Jen XX

  • FormerMember
    FormerMember

    My husband had a large orange sized tumour in the colon. First, this was removed in an op. It went well. About 6 weeks later he started chemo for three months and this shrunk the tumour in his liver. He is now going for the next op to remove this, then more chemo and then he should be OK.

    It is best to do what the doctors say and you can get over it and do really well. You may have to have more than one liver op if the tumours are in different places, my husband's is all in one place.

    Please ask anything you would like to know,

    helena.

  • FormerMember
    FormerMember

    Hi Jen..

    Its great to have a response.  I'm new to the site.  I'm from South Africa.  I have been diagnose with Primary Colon Cancer which has spread to the Liver in November 2008. According to the Dr, their worry is not the colon, The liver is infected on the right and left lobe.  I had no side effects uptill now, only tired for first 4or 5 days, and tinkle feeling in my toes and hands if I touch cold stuff or walk on tiles. I'm scared and confused, because I had my 3rd scan on the 16th March, saw Dr the next day.  Turmours very small, good news.  He then mentioned cutting off blood supply and freeze turmours.  My hubby then asked him about opp.  According to him liver opp patients don't really survive, but he will show my scan to liver surgeons and come back. How about this, he phoned me 2 days later to say they want to operate.  First opp, the colon, with chemo afterwards. 5 wks to recover, 2nd opp, left lobe of liver, chemo, 5wks to recover, 3rd opp, right lobe, chemo. Its crasy and confusing !! For telling me negative things 2 days before and wants to operate and giving me 3 days to decide.  I'm just human he scared me off.

    He is quite new at the hospital. He started there 2 months before my first chemo. He is really supportive and kind, but sometimes he talks in circles. I told him yesterday, me and hubby had a talk.  I decided I want him to do 3  things for me.  First I want to carry on with my 3 sessions of chemo, [which will be my 4th cycle], an appointment with surgeon and a PET scan [expensive here by us, hopefully medical will cover].  Then I will reconsider.

    I have 5 kids.  My eldest Alvona is 23, staying on her own, Tammy 18yrs,  taking a break this year, goin to univercity next year, Haley 10yrs in Grade 5,  Zoe 6yrs in Grade 1.  All girls.  I love them so much, our life has changed such a lot, spiritually and personally.  I told myself I will fight back with everything I got. My faith is just growing stronger by the day, I won't give up, I got a lot to live for, my hubby and my beautiful kids.

    What can I say, I'm just human, I got my off days where I cry my heart out, ask God why, why.  Then I just pull myself up and pray and thank God for getting me so far in treatment and for every morning I wake up. I told myself I'm putting everything in God's hands, I asked Him for healing and I am patiently waiting.  I always say, it's Your will.

    I said such a lot, next time I want to share something else with you.

    Keep well, friend, be strong and never lose your Faith.  Greetings to your family.  I feel so good now, I'm not alone out there., its was good letting out to someone who will understand.

    Luv

    Porchiajeff

  • FormerMember
    FormerMember

    You will be fast asleep throughout.  (Make sure your anaesthetist knows) and you will wake up with no memory, just a raging thirst.  Check your surgeon's credentials, but these things are better out than in.  Your prospects are much better if you have the surgery.

    Come on this site a lot, read the jokes and laugh.  That will make you feel better.  Then look Death in the face, and turn your back.  Just worry about each stage in turn, preferably in daylight, and make sure you do it properly, or the gremllins come and eat away at you in the middle of the night.  

    I have had colon surgery, and I am fine.  No bags, just me.

    I hope this helps

    Rwth

  • FormerMember
    FormerMember

    I think the doc is right in what he has told you to get rid of it all. It is such a lot to take in and sounds like such a lot to have done but try to be brave and strong and go through it step by step and you will live for your girls. My husband was told he should be OK after the liver op, whoever told you people die is wrong. We were told the liver op or getting rid of the liver tumours by freezing or wharever is the only way to survive.

    There is another friend on here, Anne, known as Triplets as she has triplets, her husband has been through all the chemo and 2 liver ops and is getting on well.

    I am always here for you,

    helena.