It just gets worse......
Nine weeks (to the day) after my husband's biopsy, having been diagnosed with Advanced, Invasive Bladder Cancer, we get the long awaited 'phone call.
"Would you like to come to the hospital for a talk?", said the Urology Nurse. "Yes", I said, "That would be better than the telephone". She then said that she would give a brief summary now. I said that I would put her on 'speaker'. She then blurted out, in the nicest possible way, that my husband is inoperable and that all they could offer was chemo to slow the Cancer down. Well, words cannot describe our faces and right now I cannot think of an appropriate adjective for our feelings.
She said that a MacMillan Nurse would be calling but at this point I really don't know what anyone can do.
We now wait another two weeks for an up-to-date CT Scan and then see the 'guy' from Liverpool on his weekly visit.
Sorry, can't smile but really pray that some of you have private medical care as the waiting has caused this situation. My husband was diagnosed in Spain, in February, whilst on holiday.At that time it was solely confined to the Bladder Yes, it took three weeks to get home due to the ferries not having space for the motorhome, but the waiting from then on is 'your life in their hands'.This really is where having hard cash comes into play. The Spanish Consultant was prepared to operate straight away, but we couldn't pay him with our house.
Much love and every good wish to you all,
Tricia. X
FormerMember
Hi Tricia,
Sorry to hear your miserable news. Not much to say except I think you should take Daffie's advice and make the most of life. That's the decision we made when we thought my partner had Parkinson's Disease about 5 years ago. It turned out he didn't have it and that was great, of course, but then I was diagnosed with incurable leukaemia so thank God we'd already sold the business and embarked on a life of self indulgence! We're still at it, come hell or high water. I suggest you do the same and get full use out of that motorhome!
Thank you all so much for your response. It really is good to know that you are all there reading but it also saddens me that you are all suffering so much too, and yet you take the time to support somebody like me. I feel humbled. I read all of your posts and never cease to be amazed at how you are coping.
I have two sisters who live near us but one lost her husband to Brain Cancer two years ago and distances herself, which I can understand, and my younger sister has blissfully sailed through life wthout a problem and so just doesn't understand at all.My husband is originally from Plymouth and has a twin brother, yes, irony of ironies, they've never got along. So we are pretty much on our own and housebound as the loo is needed about every fifteen minutes and the tablets are not easing the pain any longer. The motorhome won't be going anywhere either, it's such a big brute, I just couldn't manage to fling it around and so we are thankful that we made a beautiful garden where we can sit in the greenhouse and admire it when the weather isn't so good.
You are funny Indie, I just love ya! Hey Shelagh, I also live in that little place in the Irish Sea where you worked for a couple of weeks (I've got 3 legs).
Not really relevant to all the above but I had a blood test today and all is OK. The meds are still holding the bugger back. I wish everybody could get so lucky, I really do.
