How bad can this 'thing' get!

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Hi Everybody,

Long time again since last Blog and things don't get any better. Having had lots of problems with the Nephrostomy Tube fitted to my Husband's good kidney as he lost the use of the left side one during Chemo, we now face mets to the brain and 5 days of Radio in Liverpool. Also, he has involuntary movements in his arms and legs to the point where a cup of tea can get flung into the air and his legs just crumble underneath him. The Onc. doesn't have an answer for this, but then, they aren't doing any more scans, I had to push for the Brain Scan as I thought that something just wasn't right since Christmas time.

He is so good and never complains even though he knows that his brain is 'acting up', but I think that I am nearing Tether's End. It's so difficult trying to make him understand what I'm trying to say. Sometimes he grasps straightaway, other times he answers with a completely different topic so I just agree, it's easier.

And so we look forward to some more sleepless nights. I just feel so inadequate even though I'm doing all that I can. Just don't know why I bother praying anymore.

Thank you if you read this.

Love, Tricia. X

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