What Would You Do?

OK … this is long, so apologies in advance I’ve been in out of the doctors for the last six months complaining of increasing pain in my LHS groin area. I did initially go directly to my haematologist who dismissed my concerns as unrelated to my ongoing NHL cancer. I was told that I should always see my GP in the first instance of any concern anyway. I was a bit troubled by this as the GP generally can do no more than refer me back to the consultant. I guess I’d always imagined that someone with a chronic illness would have direct access to the consultant’s office. Anyway, as the pain has increased alongside a general deterioration in health I have been dispensed pain killers and reassurance in equal measure from the GP. Protocol, or otherwise, seems to prohibit them from doing more than this. The haematologist has suggested that the pain issue is likely to be due to stress and worry. This is, quite frankly, bollocks - no pun intended. Anyway, as time has gone on and the pain has intensified I feel firmly out of the loop regarding direct, hands-on treatment that could potentially be of help to a cancer patient. Indeed, it’s somewhat akin to being treated as a ‘normal’ patient as I wait my turn for a new set of consultants to cast their pearls of wisdom at me. So here I am, nine months on and still no further into understanding what is happening. Again, the consultant says that her remit is for NHL only. I just feel so bloody awful all the time in a way I can't relate to any other illness. The latest consultant says I should be scanned (year since last) but has referred this back to the Haematologist – for reasons of protocol or otherwise. So, more time ticks away. Is this the normal experience of others? This whole approach seems to be reckless to me. I’m not sure what to do next.