Before this appointment I was feeling anxious, wondering what will be the next stage of treatment and what all of this can lead to, am I completely in the clear? Will this come back? Do I need further treatment? I really want this all over and done with now, but realise this will have some form of hold over me for the rest of my life.
So from the actual appointment we are not really any wiser in knowing what is next as the oncologist is still waiting on the results of the lynch syndrome testing. These results will dictate what happens next as there is evidence that chemotherapy isn’t as effective on tumours that stem from lynch syndrome, which could explain why my tumour didn’t shrink that much in the first place, but until we have those results we won’t know. If I do have more chemo it wouldn’t be until end November/beginning of December. Because the tumour went through the bowel wall into the lymph nodes there is a high chance that there will be a reoccurrence of the cancer.
With my right side and the pain I’m in when I try to sleep, the oncologist had a feel and said there is definitely a lump there about the size of an orange. Due to the size he doesn’t think it’s anything cancerous as it would have been seen in my operation and it’s highly unlikely anything could grow that quickly. He thinks it could be a fluid build up/collection of something. He is contacting Basingstoke to see if they want to scan me to check me out as they did the operation, if not I’ll likely have a scan at Reading.
While it’s not great being in limbo still, as I think the appointment was neither really bad or really good, as we don’t know for certain what is going on with me. I do feel reassured that I am being looked after and they want to get the treatment right for me. Also I felt reassured that I was listened to about the pain in my right side and that I should hopefully be checked out pretty soon to see what is actually going on inside my body.
