Endometriam Cancer Grade 111C; coping with low survival rate info

1 minute read time.

Wondering how women with Papillary Serous Adencarcinoma with clear cells Grade 111C cope with the poor survival rate they read about when they look it up on the internet?  At the moment it seems there's a 33% chance of survival for us.  Is this your reading? Has it improved? Would like to know more!

I tend to not automatically believe I will be the lucky 1 in 3.  What kind  of presumtious thinking is this:

"Oh of course it's going to be me. I'm so special, so strong, I know how to do this!"  

Fundementally, I don't see why it should necessarily be me, though it could be, of course.  I have told myself that I preferred to try to be realistic and say

"this could be a very long haul and so you would be better to organize your life to be as well as you can, emotionally." 

In those dark days of chemo, post op, I spoke to my new female God, I meditated and flushed out my cancer cells, I found all sorts of internal strengths to feel good about. I worked on dealing with my cancer the best I could,;so if there was a chance of being the 1 in 3, it might just be me

But gradually, through feeling ill for so many months (now I'm on 55th Radio Therapy treatment), I've stopped meditating, stopped vizualizing, stopped delighting in my female god and I've become maudlin.

Until today.  I went to have a head massage and a facial.  I felt good, less mentally tired, prettier, alive, less DIZZY!!!    I enjoyed my lunch, which I don't usually enjoy.

I read the Budwig Protocal,which is helpful, especially the spiritual aspect of it (havent dared tried the diet since I have a nuttritionalist).

Some friends are coming round for a short visit in a few hours. I have wonderful family and friends.I don't know more than this.

The future bothers me.  I can have dreams I enjoy, (for example my youngest son is going to have a baby. I'm going to visit my mother in California and see friends in LA).  Then I experience deep secret  fears which are like bad dreams (mostly financial).  I would appreciate sharing experiences with someone, or others who are also dealing with this roller coaster ride. 

 

Anonymous
  • FormerMember
    FormerMember

    Oh I'm sure you are worried.  Dear Lorraine.  It would be very difficult not to.

    Oh, thank goodness you can have a check asap.Waiting is just awful.  

     The secretary was really nice to tell you that it's pretty common to spot after brachytherapy...hold on to that one.   (as much as you reasonably can).  

    Remember what we told each other...

    I'll check this page on Thursday, though I'm driving up to Milan on Friday...without my lap top. Damn.  I'll find a way to get your news...and I'll be pulling for you.

    And by the way, we want a LOT more than a few months remission here, we want lots more than that!  

    It's time for some serious spoiling now isn't it?  Distraction therapy!...can you make a last minute appointment for an hour long head massage, manicure, pedicure, whatever pampers and feels as good as it possibly can....easy things to do....ok?

    AND, lastly, PLEASE try to trust .....that all the therapy you have been having is still working on the cancer cells, still killing them off,  (if there still are any) and that a sign of returning cancer is incredibly, incredibly rare at this short distance. My doctors told me this.   Hold onto this thought too,OK?  

    Lots of love

    Penny xx

  • FormerMember
    FormerMember

    Dear Lorraine

    My turn now!  Not spotting, but the results of my smear test came back with something weird about the cells (though not cancerogenous)....the doc thinks it's because of so much radio therapy...(lets face it, I had almost three months of it, every day!!!)...but they want to do another test.  Just to make sure.

    So there's a blip on my horizon.

    I'm going to try to set aside  the worrying about the blip and

    i'm going of to California anyway. I need to see my Mum.

    Shall do the smear test and a colposcopy test again in Feb.  Doc says that's OK (gives my body more time to get over the Radio herapy).

    The thing is, that the effects of Radio Therapy are very likely to be felt one way or another, and for quite some time, so better to put it all down to that right now.

    I'll do my best.  bye and love

    Penny x

  • FormerMember
    FormerMember

    Hi Penny  - Im', ok - but drunk (the next bit is John dictating to me to write to you, haha)

    Happy new year.

    I am sorry not to have got back to you earlier.  As you know I went for my checkup earlier today that I brought forward.  I was examined by a really nice doctor who assured me that everything was nornal and that the symptoms were due to the bracytherapy.  Though the examination was not as thorough as I would have expected or may be hoped for, at least I have the assurance that there is nothing untoward.

    his is me now - I will send you another message when I am sober.

    Love and hugs.

    Lorraine

    x

  • FormerMember
    FormerMember

    YIPEE!!!!

    Fantastic news.  I'll catch up with you some other time now...off on my world trips now!!

    not looking forward to airport controls....ugh!!  got to go through terminal 5 at Heathrow,

    lots love

    Penny xx

  • FormerMember
    FormerMember

    Hi Penny

    Far too much over indulgence last night so today will be a lovely lazy day.

    Try not to worry about the results of the smear.  Maybe if you leave it a couple of months things might settle down.

    New year - new start.

    Go on your wonderful holiday, relax and have a fabulous time.

    Lots of love

    Lorraine

    x