Endometriam Cancer Grade 111C; coping with low survival rate info

1 minute read time.

Wondering how women with Papillary Serous Adencarcinoma with clear cells Grade 111C cope with the poor survival rate they read about when they look it up on the internet?  At the moment it seems there's a 33% chance of survival for us.  Is this your reading? Has it improved? Would like to know more!

I tend to not automatically believe I will be the lucky 1 in 3.  What kind  of presumtious thinking is this:

"Oh of course it's going to be me. I'm so special, so strong, I know how to do this!"  

Fundementally, I don't see why it should necessarily be me, though it could be, of course.  I have told myself that I preferred to try to be realistic and say

"this could be a very long haul and so you would be better to organize your life to be as well as you can, emotionally." 

In those dark days of chemo, post op, I spoke to my new female God, I meditated and flushed out my cancer cells, I found all sorts of internal strengths to feel good about. I worked on dealing with my cancer the best I could,;so if there was a chance of being the 1 in 3, it might just be me

But gradually, through feeling ill for so many months (now I'm on 55th Radio Therapy treatment), I've stopped meditating, stopped vizualizing, stopped delighting in my female god and I've become maudlin.

Until today.  I went to have a head massage and a facial.  I felt good, less mentally tired, prettier, alive, less DIZZY!!!    I enjoyed my lunch, which I don't usually enjoy.

I read the Budwig Protocal,which is helpful, especially the spiritual aspect of it (havent dared tried the diet since I have a nuttritionalist).

Some friends are coming round for a short visit in a few hours. I have wonderful family and friends.I don't know more than this.

The future bothers me.  I can have dreams I enjoy, (for example my youngest son is going to have a baby. I'm going to visit my mother in California and see friends in LA).  Then I experience deep secret  fears which are like bad dreams (mostly financial).  I would appreciate sharing experiences with someone, or others who are also dealing with this roller coaster ride. 

 

Anonymous
  • FormerMember
    FormerMember

    Congratulations Penny

    What marvelous news.  You must be over the moon.  That;s the kind of news we love to receive.  I have my first check up on Jan 7th and then we head back on 11/12th Jan for the last time.

    We left over 2ft of snow in Philadelphia to land in Manchester to more snow - it's like a winter wonderland.  

    It's been a lovely Christmas Day and Boxing Day with the family but had far too much alcohol and late nights so time to reign in I think.  

    Have a great time in Milan and enjoy the sunshine in LA.  The west coast is so much warmer than the east coast at this time of year.  Do you mind me asking where you managed to get travel insurance for America from as it seems so darn expensive once you have our diagnosis.

    Take care.

    Lots of love

    Lorraine

    x

  • FormerMember
    FormerMember

    Hi Lorraine,

    I don't have insurance.!!!  My mother and my brother (and their large family) have lived in California for years and years and so if I need someone while I'm out there, I'd visit their docs.

    I'm only there for 5 weeks, should be OK.

    When I lived in USA I had Blue Cross Blue Shield with my job (went out as a journalist years and years ago!).

    I've got a silly question for you now.

    I put out a blog the other day, to share the good news (cos we all share our bad dont we?  I thought it was only right to share the bright at the end of the dark).  Anyway a few very supportive people blogged back nicely - then I got this raging dreadful one.

    I want to reply to this one - but I don't know how to reply.  

    Do I just write in this 'Add a Comment' box?  Oh silly me, pleaseplease help

    I'm having a really quiet afternoon - Sam and Daisy went off to Assisi, and Gwyn went up to Maremma in Tuscany to get the farm house rady for a huge New Years party.

    No more mice pies in my apartment thank goodness..but I've put on so much weight.  Not FAIR.

    Let me know how it goes when you get your results after 7th PLEASE...

    bye for now and love Penny xx

  • FormerMember
    FormerMember

    Hi Penny

    I've just read Sarsfield's response and cannot believe what he said.  He was totally out of order and I said as much in my response.  You can either just add in the comment box or go to his actual profile and send him a message.

    There is absolutely no reason to respond in that manner and you could even complain to administration.  Don't take it personally Penny, he is just a dickhead and probably a jealous one at that!  Your blogs are very elequent and well written so please don't change your writing style and content.

    Have a wonderful new year and I hope I get the same news as you on Jan 7th.

    Love and hugs

    Lorraine

    x

  • FormerMember
    FormerMember

    hi Lorraine,

    Thanks for the real support with what's his name!

    Anyway, maybe I made a mistake but I found him being all patronizing somewhere on the site and wrote him a blog...mind you, it would probably have been better to write to admin, but i'm hopeless trying to work things out on this site...hopeless.

    Wont your results be out round about 14th? I had to wait a week for mine.

    Anyway, I'll check from California.

    bye again and lots and lots of love

    Penny xxx

  • FormerMember
    FormerMember

    Hi Penny,

    I've brought my appointment forward to New Year's Eve because I have started spotting.  They told me that if it comes back the chances are that it will be at the vaginal cuff.   I spoke with my doctor's secretary today and she said it's pretty common after bracytherapy but I am actually very worried.

    I feel I can't go through all that treatment again - not so soon.  I would like at least a few months remission.

    I will let you know what she says on Thursday.

    Lots of love

    Lorraine

    x