just diagnosed with bladder cancer.

2 minute read time.

I was diagnosed on tuesday 21 sept 2010 as having bladder cancer, i went to hospital for the flexable cystoscopy thinking they might find some infection or something, the word cancer didnt enter my mind, i dont really know what i thought they would find to be honest.

my main worry was at that time having anything inserted in my euretha, and how was anything going to fit up there!  when actually that part was not even the slightest problem and didnt feel a thing, silly really but i am a man and these things fill me with dread for some reason, although i am intersted to see what is going on and keen to know how it goes and works.

Tomorrow the 24 sept 2010 i am due to have the tumor removed a 'TURBT'  i think they call it, i have no worries about the proceedure, or any part of the hospital visit and stay, i am sure it will be done with the utmost professionalism  and courtesy by wonderful staff who actually care, but what is worrying me the most at this juncture is not knowing how bad a tumor i have, is it an invasive or non invasive, can it be treated and if so do i have a future, or am i on the scap heap, now in gods waiting room, so to speak.

I am torn between which type of anasthetic to have, i think i would like to watch the proceedure being done opting to have an epidural rather than being put to sleep as seeing nothing, and waking up to someone who will just say it went well or it didnt, the information i am sure will not be there. and i will feel like i have missed an important part of my future being unravelled by some who doesnt even know me, and possibly making life changing deccissions while i am asleep.

Whilst i have no fear of death, i dont feel ready yet to depart this planet, and certainly not like this, i still have things to do mountains to climb, places to see and people to meet, whilst i am in my 50s i am still young in my outlook and the things i do, the sport i play, and the way i live, does not reflect my age compared to those around me of a similar age.

I hope this dosnt come accross all wrong, as this is the first blogg i have ever written, and am just ranting really what i am feeling, i suppose i am just a scared guy trying to act how i think other people expect you too,when all i really want to do is cry my eyes out!, but when that word 'cancer' is aimed directly at you, it suddenly takes on a whole new meaning and role, and plays havoc with you mind and emocions (i might be 50+ but i still cant spell!)

If you are still reading this, then well done for sticking with it, and sorry to have bored you silly. wish me luck and i will keep you posted.

 

Anonymous
  • FormerMember
    FormerMember

    Hi Pauli, you rant all you want hun thats part of bloggin, hope all goes well for you and will be thinking of you take care, and theres always a shoulder here if you need one.xxxx

  • FormerMember
    FormerMember

    Hi Paul

    Welcome to Macland. I'm sure you will be glad you found this site as the Maclanders will become your best friends. I can't begin to tell you how much they helped me through my journey. The support, advice and friendship is second to none. We all know how you are feeling right now, emotions are all over the place. I wish you the best of luck for tomorrow, and look forward to hearing how you are getting on.

    Angela (52 years young) xx

  • FormerMember
    FormerMember

    Wow what a response, i am very encouraged to read your comments, and thank you all for taking the time to comment, you all seem positive people also with your own problems, thanks for your well wishes and for sure i will let you know how i get on.

    I have spent my life helping others around the world with lifes problems, and i find it strange now being the one who needs help, its fantastic to get it but i am feeling very strange with people being nice to me, when its usually me being the one giving support, i now realise i dont know how to handle it at all.

    Can you beleive it i think i have been scammed, as some geek has texted me saying they are going to take money out of my account tomorrow, at a time when i  am unable to do anything about it, luckily family are around to take counter measures.

    well must eat something before curfew at midnight.

    Good luck to you all, i wish you all the very best.

    May i just ask, why are there so many more women on here than men, is it because we men are so embarressed that we cant talk about these things, and women can,? whatever, i have found it helps tremendously to talk to anyone who will listen, i havnt cried in the last 5 hours! so im nearly getting used to the idea.

    Take care you all.

    Paul.

  • FormerMember
    FormerMember

    Well it went pear shaped!

    I fasted from midnight like it said in the letter, only drank clear fluids until it said, got up at 04:00 so as to be at the hospital at 07:00, arrived at 06:35 no one was there, the doors opened at 06:55 i was the first through the door, the waiting area filed up slowly and i recognised some people from my visit last tueseday, so said hello to them, and like me he also has a tumor in the bladder, we were all told our position on the list, and i was at No:2 great i thought.

    Slowly one by one people were called to see the Aneathertist and then the surgeon who was the same one who did the flexible Cystostcopy in the week, both of these guys were fantastic and allayed any fears that i had and gladly answered all my 10 questions, and agreed to look at another concern while i was under, great i thought they have a positive outlook for me so it cant be that bad at this point, i felt a great weight had been lifted from my shoulders, we retuned to the waiting area for further instructions.

    5 hours later i am still sitting there! everyone else had been processed through even the guy who had been behind me all the way through each stage.

    Then i hear my name being called, this is it i thought and got up with my over stuffed bag only to be told, sorry but there are no beds available now for today, you will have to come back next friday the 1st of October in the afternoon! you could have knocked me down with a feather!

    As it turns out there was never enough beds for the day, so they were prioratising people an i was the least needful case, which is fine and if the other guys are in greater need of urgent attension , then i dont have a problem with that, but did i need to wait around for 5 hours! could they not have told me sooner i wonder, anyway the nurse was very nice and i felt sorry for her having to tell me this news, also i was the least scary person there so an obviouse choice i suppose they knew i would not question them or get angry, unlike some of the other people there who were by now fit to explode and getting very abusive.

    So we went to the pub for lunch and now i have to text at least 100 people to let them know, and see if my sister who is flying down from Scotland to be with me during my hour of need is ok to stay a bit longer!

    Oh dear i am exhausted now.

    What about work should i go in and try and work as normal? or not? i dont know i cant really concentrate and focus my mind on anything much at the moment, and there is plenty i can do here, i think i will take a pre op break.

    One thing that dissapointed me was, i had elected to have an epidural so i could watch the whole thing through while it was being done, as it turns out there is only one monitor in the theater which obviosly the surgon needs to look at, so its the usual route now of general.

    Thanks again for listening to my tale of woooo!

    And good luck and wishes to those people who are now a bit sore and coming round.

    Pauli

  • FormerMember
    FormerMember

    Hi Pauli

    My Partner was diagnosed with bladder tumour last week he is only 44. Due to have TURBT on Tuesday. Like you the last thing we expected was this, also thought it was probably an infection. What a shock feels very surreal. Not sure what to expect there is so much uncertainty and it feels like life is on hold. Keep searching the internet for answers but just seems to make it worse. Guess it's all just up to the Great man in the sky.

    Worst time of my life. My emotions are all over the place. Trying to be strong for him but petrified. What will I tell the kids? he seems so fit and well that it doesn't seem possible the only symptom was an episode of bloody urine completely out of the blue. Still have to face the results of staging and grading, absolutely dreading it.

    How are you getting along now?