Just a quick note as I have just joined, and 'quick' because I am so exhausted. My mum is 92, and had a good life so we are lucky by many other peoples standards. She became suddenly unwell on her birthday back in November and nearly died then. But she was given several blood transfusions whilst they ran tests to see what was wrong. Just before Christmas she was diagnosed with leukaemia. She is now at home in the final stages of her life.
Thank god for Macmillan nurses who have supported us.
There has been some battles on the way with arrogant doctors and nurses in the general hospital. I dont think they practice TLC (tender loving care) anymore. Its probably not in the degree syllabus.
I wish the elderly patients could be seen as ordinary people. And it seems that many times we have had to be prepared to be confrontational to be heard. The medical profession (more so the nurses) seem to quote the data protection act every other sentence. I think its a way of withholding information which in turn creates an atmosphere of power over the patient and relative. I am afraid that we have experienced this with the death of my dad 20yrs ago and the death of my mother in law 13 years ago. Time for a change in the law???!!!
Paul
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