D-Day Tuesday 17th November

1 minute read time.

It is with slight nerves that i will be going to the Oncology dept tomorrow to find out what sort of cancer i have now for the 3rd time.

 

I have had countless appointments over the past few months and somehow feel that something more direct could have been done by now especially as this Lymph node has been on the oncology radar for the past year. Have been to Royal Brompton to have an EBUS Biopsy, which i hasten to add if the sedative does not work as it did to me, the experience is horrifying. These results i should now get.

 

Problem being is that the first Cancer i had in 2004, only 1% of the population have it when they are in the 6th or 7th decade. I was 37 which takes me to 0.5%. Then for it to migrate to the Aorta is another 0.5% of the original 0.5%. Now if this cancer is related then the oncology dept have said they will not know how to treat it..... This makes me very scared for the outcome.

I have been on here for a month or so to try and find comfort by chatting to people who may have gone through similar, or jst anothe voice but so far nothing much to report.

Anonymous
  • Hi Pam

    All the very best for tomorrow.

    Will keep my fingers and toes crossed for you.

    Love

    Sue xxx

  • FormerMember
    FormerMember

    Hi Paul, gosh your cancer is more rarer than mine, no wonder you feel so lost on this site!!!

    I can't give you the answers you need but I can give you some support!

    Take care, big hugs,

                Alison.

  • FormerMember
    FormerMember

    Well update from yesterdays appointment.. Yep its the same cancer that has migrated again to the Hilar lymph node!

    Oncology are stumped, this now puts me in the 0.01% of population. they are now going ahead with Chemo (if it does not kill me like it nearly did last time), they cant do surgery and RT may be an option but it looks like there is another area of interest....

    I know im now classed as a special case but would rather not be if you know what i mean!!

  • FormerMember
    FormerMember

    Dear Paul sorry you are facing all this with the added anxieties of being such a rare case. Hopefully they will be able to give you a better idea of a treatment plan and it will be something you can tolerate.

    When do you go back to the hospital? Do you have to another onc appointment or have you got a chemo start date already?

    Love Chrissi xxx