Pat had his appointment yesterday with the Director of Oncology Dr Kapur. He was very nice. He explained things very well and said that normally Pat would be a candidate for surgery, but that no surgeon would touch him, (his words), because the risk of surgery was higher than the risk with the tumour. This is because of the Heart and Diabetes.The only time surgery would be considered is as a emergency if the bowel becomes obstructed. This does happen occasionally. He said that the injections take a while to work because the tumour has grown slowly over some years and it takes a while to stop it from being so active. It is the small Liver Carcinoid secondary that is giving all the nausea symptoms.
He felt sure that Pat would feel a lot better in a few months time. This gave us hope as he really isn’t too good at the moment. The injections are the only treatment that can be offered in the circumstances.
The plan is that he will see Pat every 6 months and scan him again. Pat will also continue to go to the Paget to have the injections and see Dr Denedde there in between times. It was a lovely centre and the staff were very friendly. We feel we know where we stand at last. We both felt rather nervous as the appointment came out of the blue, but are feeling relieved today. He has advised Pat to keep a diary of what he eats so that he can identify certain foods that make him feel ill and avoid them. He is certainly being closely monitored and we can't fault our treatment.
It's an uncertain journey and he is not too good at the moment. Our lives are really restricted to being mainly at home but we do get out a little on the good days. This month has not been quite so good as the last but we have to be patient.
