Pat has now plateaued. He had his Octreotide injection on the ward yesterday and was given Morphine beforehand at my request. I phoned this am and he had a comfortable night.
He is doubly incontinent, totally paralysed on the right side and cannot speak, but understands. He is not expected to improve further. Although his medical need has gone from not needing to be in hospital to now needing to due to increased pain levels,the long term planning has begun. I am told that although he has many needs, he is unlikely to get Continuing Care which would NHS fund care in the community. Much as I would wish to, it is not possible to have him at home, even with full support input. I am fortunate in having access to some expert advice should Continuing care be denied. I am afraid it is all about money.
I have approached a local hospice that is opening 3 palliative care beds near to where I live. It is a long shot, but worth a try.I got the contact from the local cancer support services at our hospital.
Will keep you informed.
