Hi all i am new to this site please excuse my spelling ,i have being on cemo for eighteen months had emergency operation for bowel caner in intensive care for six days hospital for twentytwo days i have a stoma and secondry liver any out their can share with me wishing you all well keep positive please peggy if you read this please contact me you have so much information.Bless you all Patrickj
FormerMember
I have bowel cancer with liver and lung mets but I had bowel and liver op together after some chemo and am now having some more chemo. If I can help you in any way please ask. We are all in this together.
I had bowel cancer with liver mets. I got your PM asking about what treatment I'd had so thought I'd reply in the comments so others can read this as well. Hope that's OK !
The Chemo I was on (Cepcitabine, Oxaliplatin and Cetiximab) helped reduce the mets for a few months before they were operated on. I had Cetuximab because I was found to be genetic compatible with it, otherwise I would have been on Avastin. Side effects of Cetuximab were not great though, with skin rashes esp. on my head, but only for a few days each cycle.
Initially I was looked at in Hammersmith hospital, and they suggested leaving the chemo to destroy the mets, as they were quite hard to see on the scan. I think it was the fact that they failed to show up easily on scans meant I quite quickly looked for a second opinion, and my Oncologist recommend Mr Myrddin Rees. In a consultation with him, after an MRI on his machine at Basingstoke, he agreed the scans were not clear, but operating had proven to be the reliable treatment so far so recommended I did go with surgery.
To cut it short, I went with the surgery, Mr Rees took away two "wedge cuts" from my liver and the recovery went very smoothly after that. I am yet to have my final scan, but hopefully this is it and I am clear now. I would highly recommend Mr Rees for any liver operations you may be due for - he has pioneered liver surgery forward over the last 20 years and whilst I have little experience of any other liver surgeons, I feel confident in saying he is one of the top names in his field, and a very reassuring and friendly fellow to boot.
Feel free to PM or post in the forums if you would like to know anything more. Welcome to the forums and I hope things go well for you.
go your email but was in hospital, was rushed in feeling ill and had to have a stoma put in place.
I start chemo next week -first time. then hopefully if it works they will operate. keep me informed of how you are doing, the forums have been good for me even though I have only been on them for a couple of weeks, everyone is so nice.
I am under st. Thomas in London anyone had any experience there?
I was away for a couple off weeks i just checked my e-mail to day ,i have being on cemo for eighteen months its going ok you will feel very tired but you get over it after a couple of days,what cemo are you on ,i am attending the royal marsden the hospital and nurses are so caring,you must keep positive and your diet i bleive is very important.
Yes st thomas is a very good hospital,is your liver operable,how are you coping with your stoma its important to see your stoma nurse .I am having a ct scan tommorow and have an appointment to see my prof on friday keeping my fingers crossed,if i can be any help to you please contact me keep in touch and keep the chin up.
Sorry for not getting back to you hope your partner is coping with his treatment,i am having a ct scan tmr and seeing the prof on friday ave got alot of decisons to make in the next month tell your partner to keep positive.
