FFS

1 minute read time.
So I wrote my last reasonably upbeat blog post on my phone while watching the kids at swimming lessons. Got home still upbeat to visibly distressed husband. His consultant had been on the phone, 5pm on a Friday, what a guy! He said, I think, and I don't know all the ins and outs cos j was too upset to take it all in, he's had a meeting at Newcastle ( a real one this time) and they've decided that j will be better on beacopp rather than Abvd. He wants j to finish this cycle of abvd and then start the beacopp. It will be harder and has more risks attached (more chance of infection and more chance of subsequent cancer) but the results with advanced Hodgkins patients are better. I've googled it and see it is controversial. They like it in Germany but not in America. The risks have frightened j. He's been so positive all the way through, I don't think he even realised till now that not everyone survives and now he knows. I think we need to see the consultant and have a full and frank talk. Go back and start again properly. It's horrid when he was all geared up for the abvd regime...
Anonymous
  • FormerMember
    FormerMember

    I'm so sorry to hear you're both having such a tough time. Definitely talk it out with him. J needs to make decisions about his treatment that are right for him. I hope things start to get easier soon. Take care. xxxx