Birthday chemotherapy

2 minute read time.

J turned 38 yesterday, and of course, it happened to be a chemo day, but everyone rallied round and I think he actually had a really lovely day. The nurse on his chemo ward got him a cake and a card and everyone sang to him on the ward; and as it was his short day he was back home in time for lunch out with his mum and his brother. After that, at night, me and the boys made him a fabulous (it really was) rainbow cake, which we had for pudding, after a nice takeaway curry and a forbidden bottle of cobra. So much for chemo making you sick eh? What a little piglet!! (though think he is slightly suffering today!!)

I’m a bit concerned that the rest of the birthday celebrations are going to make him exhausted. He’s going with 8 of his friends to watch the football on Saturday – an hour and a half drive away. Then, on Sunday, another friend has organised a crown green bowling tournament for 10 of them which they want to follow with a Sunday roast at the pub with all of the wives, girlfriends and kids. I think it’ll be lovely but he will find it all very tiring. We will see…

On another note I emailed the consultant about J’s drugs. He has been very honest and admitted failing to prescribe the stomach drug. He DID prescribe the right amount of 2 other drugs, but either the pharmacy got the doseage wrong, or the they got it right and the nurse on J’s ward wrote it down wrong. Either way I think she is probably in trouble because she didn’t follow it up when j asked twice about the missing one. This makes me cross because she is a wonderful person – she’s the one who got the cake, and always saves him a seat. She’s just very very over-worked, often running a full ward of chemo patients by herself – rather like spinning plates with the alarms beeping and bags needing changes all over the place.

J talked to her yesterday about the rubbish appointments with the consultant and she was very apologetic about the shoddy service. She said there are only 2 haematology consultants now and the rest of them are locums, so J’s Dr is taking more and more work on and is terribly over-worked. It sounds to me like cuts are to blame for everything, and there’s David Cameron on my telly spouting on about how they’re giving everyone the best care with the NHS. Yes right, pulling it all to pieces more like…. 

Anonymous
  • FormerMember
    FormerMember
    Hi Glad Js birthday was ok and I hope he's not completely done in by now!! At least you got some answers about his meds and it seems honest ones. It's so scary what mistakes can happen and how on it we have to be. M's last round was last week and this week has been ok, all being well just antibody treatments left and all done by the end of this month. Then we wait again for scans and results Hope you're ok and the joys are doing well H xx