The Story So Far...

2 minute read time.

Can't believe it's been just over a week since we were told my partner of 13 years had cancer.

It all started a couple of months ago when he started to get stomach pains. We started to do research and cut out wheat - at the time he was really fed up about not being able to eat pizza. To be able to go back there would be amazing.

He went to the doctor and they suggested laxatives which didn't help at all - next satge was a blood test. This came back normal, apart from the 'start of liver damage' - we put this down to the occassional binge drinking sessions which, as a couple in our early 30s we are sometimes guilty of. We decided to give up alcohol for a while.

A wait of over a month for an ultrasound scan followed - pain didn't seem to get worse. I asked him if he wanted me to go with him to the ultasound but he said it wouldn't be worth it - thought it would be boring and expected allergy tests to be the next stage. However, at the ultrasound, the nurse picked up on something and called the doctor. He suggested a CT straight away.

I came home when he called to tell me what had happened - the hospital said that the results would be with the doctor that afternoon. Called the surgery several times - eventually the GP called to report that the ultraound had shown 'lumps on the liver' and that he'd call back if the CT came back. We sat there in shock and fear then insisted on an appointment with the GP.

He examined my partner and explained that an urgent appointment would be made with the hospital to see a specialist. In shock, we called our parents and spent a weekend crying and trying to focus on what else it could be.

Monday morning, the GP called - the CT result had come back, showing a lesion on the colon. I think I knew at that point what that met. A week of waiting for the hospital appointment followed.

When we arrived at the hospital, we saw a cancer nurse, who told us that the CT had also shown spots on the lungs. The consultant told me that we were 'clutching at straws' to think it was anything else. He got admitted and they redid the CT.

The following day he had the biopsy and a stent inserted. The next day we were told that the cancer was incurable.

Anonymous
  • FormerMember
    FormerMember

    Hi,

    We all feel for you and your partner. This dreaded thing just suddenly grads you and slings you round in a spin of test and horrible conversations.

    Hugs to you both, you're with friends here.

    Andrew xx

  • FormerMember
    FormerMember

    I'm so sorry that you and your partner have had this dreadful thunderbolt strike you. Being told you have cancer is shocking and your life changes immediately. Has chemotherapy or radiotherapy been mentioned? There are many people on this site who are in a similar position to your partner and I'm sure that they will be able to offer support and advice. Some of the bowel cancer discussions are listed under bone cancer (waiting for Admin to move to the right place) and I suggest that you take a look.

    Remember that you have lots of friends on this site who are always here to listen.

    ((((((((((((((((((((((hugs)))))))))))))))))))))))))

    Angela xxxx

  • FormerMember
    FormerMember

    agree with Andrew....tough ride ahead but you have plenty of fellow passengers to try and help cushion the bumps.

    Love & Strength

    Debs xx

  • FormerMember
    FormerMember

    Hi there and welcome to the site, i am so sorry to hear about your partner.

    My partner also has advanced bowel cancer which has spread to his liver, it is also inoperable and he is undergoing palliative chemo at the moment.

    It wasnt such a shock to us when my partner was dx back in May. He had cancer 5 years ago and had his colon removed and we thought he was cured, but sadly (after months of misdiagnoses from gp) we were given the sad news that the cancer had recurred and had metastasised to the liver.

    I am sure they will offer your partner a treatment plan so dont give up hope. There is a thread (under the bone cancer forum at the moment but will be moved back under bowel cancer this weekend hopefully) we are all experiencing the same and can give lots of advice, friendship and comfort, there is also a bowel cancer group and liver cancer group.

    I hope this helps you, please feel free to pm me anytime, stay strong, Julie x

  • FormerMember
    FormerMember

    I can honestly say I do know how you feel, My husband was misdiagnosed for over 3 years before we were told he had salivary gland cancer that had spread to his lungs and liver and was incurable and any treatment was only pallative.  I find it hard to believe that that was 18 months ago.

    You will find this club that no one wants to join is great for venting anger, fears etc and for gaining support, some days you feel held up by an invisible cyber hand.  All the best

    Shelley