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Hi, I am new here. My dad was diagnosed with Klatskin tumour in June of 2009. He is receiving PhotoDynamic Therapy and is getting stents replaced every 6 weeks or so. He is living in America, and I am living in Ireland, so this has been a difficult time. The doctor's prognosis is that he "will not be here this time next year", and from what I have read re: Klatskin tumours, he is fortunate to still be here at this point. He is hoping to start chemotherapy treatments within the next week--which we are hoping will improve his quality of life. My question is for anyone who has had experience with this type of cancer--as we don't know of anyone else who has ever had it, and would love the support of someone who has "been there" and can offer advice.  My dad's biggest complaints now are digestive problems......bloating, gas, discomfort, gnawing pain. He also gets a nerve pain that goes into his back and shoulder blade. If anyone has any advice on what may help, why he may be experiencing these symptoms, etc. it would be greatly appreciated! Thanks!

Anonymous
  • FormerMember
    FormerMember

    I dont know of Klatskin tumour I will look it up, I was surprised on the use of Photodynamic therapy, Its not very well known over here.It is supposed to be very well reported but for some reason not used as much, mores the pity, so you should feel more positive about it, I do hope you get some good news . I'm sorry I cant help any more

    Best Wishes to you and your Dad XX