Waiting!!

Hi   NHL can be difficult to group as they have to check the biopsy to type it and then depending on which type you have do you need treatment or do you go on watch and wait.

To add to the problem the results will need to go to the MDT meeting and sometimes they only meet once a week to discus you and your treatment plan.

If they know its NHL I am guessing they have the biopsy result so it must be your treatment plan that is being discussed. On some occasions they can struggle to say which sub group of nhl you have. Have you asked your consultant why the delay.

It would also help you if you prepared all your questions before you go to your next meeting, otherwise you may forget something thats important to you. If you have a key contact worker like a haematology nurse then ring her rather than the consultant, they are normally much better and understand.

Re telling people I understand about wanting things to stay as they are, unfortunately if you have to have chemo then things will change. You will also find people react in different ways when they are told and some frinds may fall by the way, again don't be suprised this has happened to all of us.

Best advice I can offer is focus on the treatment and beating the NHL, don't bother with things beyond your control, sounds like you are an athlete so should understand this.

The NHL forum is good for advice and support, once you know whats happening post up any questions and someone will be along to help.

good luck

john

cheers for the kind words John

Pete

Hi ya Pete,

If I was you I would take things  a bit easy at the minute until you get the test result. otherwise you could be doing yourself more harm than Good.

Your choice.

Take care and be safe Sarsfield.

thanks Sarsfield but by my very nature i find it almost impossible to take it easy but i am trying!

cheers pete

dont push yourself hard....

keep your energy for the weeks ahead,,,

once you start the chemo you will get a better idea of what you can do or not do...

i only told 3 people when i was diagnosed but im lucky as family and relatives dont live local and i have allways shaved my head or done it as short as possible so when hair fell out people just saw me as my usual self..

i sure never wanted anyone treating me any different or even talking about anything to do with cancer.....i wasnt in denial its just that everyone one of us is different and what works for one doesnt allways work for someone else..

me in a meeting john ? lol

in my case what i didnt know couldnt bother me....and my specialist soon learnt to say as little as possible or have me walk out having been spooked out by to much info...

lol

and to think.....some people want to know everything...eeek..

made the mistake of looking up non hodgkins lymphoma on the internet once and wished i hadnt...

so spokey...what type of nhl have you got

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