First steps

Hi Djarv

Sorry that you have had such a rotten diagnosis and hope that things improve rapidly.

I'm afraid I can't give you any advice on this but suggest you join the prostate group where I am sure you will get lots of advice and a great deal of support.

In fact you will get a lot of support from all of us in MacLand.

Stay strong and don't stop asking questions.

Much love,

Nin xxx

Hi Djarv

My husband has a reading much higher than this ,six years down the line after Hormone treatment and radiotherapy,he has been lucky no spread to his bones and doing really well.I hope side effects of hormone treatment have been explained but my husband feels they were bearable.Good luck in your treatment

Maureen

Hi Djarv,

Hi Mate, sounds very similar to mine, locally advanced, scans showed enlarge lymph glands but same as you no spread to the bones. OK the very word 'Cancer' can be scarry, but what you will find on here is a lot of guys who are or have been where you are.

I had surgery - but due to spread to lymph system Prostate not removed but put on a series of Hormone injections, once ever 3 month. These have the effect of stopping the body poducing testosterone, the male hormone, Prostate Cancer need this to grow and spread, ok some possible side effects, maybe some weight gain, loss of libedo erectile problems - so not without effects but all are manageable.

Started on my treatment 3 years ago this month, so maybe hope at the end of the tunnel, mine is inoperable but hey who, if anyone, is promised tomorow, motto has to be live today and every today. Only adive I can offer is do not be shy asking details from your consultant and the options available please.

My Psa was never higher than about 17, a friend of mine on here with about the same time scale was 1,100 and know of a patient, 10 years into treatment - his was 13,000 - (Yes 13 thousand ! ) The psa in isolation is not too importtant so don't get hung up on a figure please.

You can send me a message at any time if you have some questions, do not know all the answers, but know how to find them lol

Good Luck on Your Journey

John

Hi djarv,

Welcome to the best site for help and support, but I'm sorry you had to find us.

My psa was 19 and I've been promised a complete cure by the oncologist.

As John says the effects of the hormone treatment are bearable and worthwhile when you realise what it's doing for you. As a guide, I was worried that they stopped it when my RT finished and I wouldn't have done that for chemo!

Good luck with the journey and keep in touch, we're always here to help.

Colin

Hi djarv

sorry to hear about your problem.

my psa was only 13.5 but my doctor got me an appointment with hospital for all the tests.

it was confimed as cancer but said to be slow growing and confined to the prostate.

i was told it would be ok for years. but as a wimp i elected for surgery. not bad at all. At my post op clinic i was told that the cancer was more agressive than first thought and covered just over 20% of the prostate .

psa now 0.1 and chances are 94% that cancer all removed. remember we all respond differently to treatment.

i wish you good luck for what ever you decide.

regards

tiffy.