As many as 9 out of 10 people with cancer (90%) get cancer-related fatigue (CRF). In this blog, our senior content developer and managing editor Rachel talks about a new online resource to support people with fatigue.
What is fatigue?Fatigue is a feeling of tiredness or exhaustion. Fatigue can be especially difficult to deal with when you are already trying to cope with cancer. You may feel very tired or exhausted all or most of the time.There are things you can do for yourself that may help you cope. For example:
Support onlineRESTORE is a new online tool, developed by Macmillan and the University of Southampton, that provides information about things you can do to help you cope with fatigue. It is based on the most up-to-date evidence and can give you more confidence to manage your fatigue.
RESTORE helps you to monitor your energy levels and set goals to help you manage your fatigue more effectively. It also links to the Macmillan fatigue diary, to help you keep track of your energy levels and work out what makes your fatigue better or worse.
Lizzie’s storyLizzie had cancer-related fatigue after having treatment for oesophageal cancer. She says:
How to get supportIf you are finding it very difficult to cope with fatigue, it can help to explain any problems to your doctor or nurse. Here are some questions you may like to ask:
The RESTORE tool is available for anyone experiencing cancer-related fatigue at www.macmillanrestore.org.uk
Macmillan also has more information about fatigue, including our booklet Coping with fatigue (tiredness). You can order this booklet, which includes our fatigue diary at be.macmillan.org.uk
Macmillan's range of self-management toolsRESTORE is one of a range of self-management tools produced by Macmillan to support people to cope with different symptoms throughout their cancer journey. For example, you can use the Macmillan symptom diary to record any symptoms, and what makes them better or worse. We also have a pain diary, where you can record the level of pain and how it feels, to help you and your healthcare team find the best way to manage your pain.
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