Neuroendocrine Cancer Awareness

  • Living with Cancer - are you a survivor?

    I don't normally use the word 'survivor' in relation to my incurable cancer, it just doesn't seem to sit right despite the fact that I'm a 'glass half full' kind of guy. I always thought it only really applied to those who were in full remission. However, I was studying the term 'Survivorship' and found that there might be something in it for those living with incurable and long term cancer. …

  • Living with Cancer – 6 tips for conquering fear

    Before I was diagnosed with cancer, my relationship with my health was fairly distant. I had minor irritants that seemed to come back now and then, nothing that was going to kill me. So I just put up with most of it and time was frequently a good healer. Occasionally, I would use medicine to speed up the healing or ask a doctor for advice. Even leading up to my diagnosis, this was my strategy despite some strange things…

  • I'll still here

    Five years ago today I was diagnosed with metastatic Neuroendocrine Cancer.  Until recently, I hadn’t thought much about what this actually meant and how (or if) I should mark the occasion.  I’ve concluded there doesn’t seem to be a right or wrong way to handle these type of milestones, frequently referred to as ‘Cancerversaries‘. I’ll therefore settle for a blog!

    I don’t tend to…

  • The trouble with the NET (Part 3) – Miracle Cures

    Since I started blogging, I’ve had to become quite savvy at forming headlines for my posts as the wording can be a factor in whether someone reads it or not. A post picture can also influence.  There’s a third factor and that is credibility – I’d like to think I’ve worked hard to earn that level of trust in my ‘product’. I use the NET to talk about NETs!  I’m a genuine guy with…

  • Neuroendocrine Cancer - a Doctor's experience

    When I was undergoing my initial treatment and surgery I didn't really have the knowledge I have now.  I was initially treated by experienced Neuroendocrine Tumour (NET) specialists in an established NET Centre and I guess I felt comfortable with what was happening.  In hindsight, I wish I had studied the disease earlier as I would have understood at the time what was actually happening to my body and more fully understood…