Neuroendocrine Cancer Awareness

On the day I was diagnosed, I hadn’t really thought about questions, the only one I actually remember asking was “how long do I have left to live” (I watch too many movies!).  On the day of diagnosis and a period beyond, people tend to feel emotions of shock, denial, anger and sadness, before going on to accept their situation.  Yes, I ‘googled’ but not a great deal really – although some things I…

There’s a lot of inaccurate information out there …….

Not true.  By any scientific definition, the word ‘tumour’ means ‘an abnormal mass of tissue that results when cells divide more than they should or do not die when they should. Tumours may be benign (not cancerous), or malignant (cancerous)’.  However, The World Health Organisation…

The Somatuline 'reservoir' forming in the deep subcutaneous tissue[/caption]

I think after 87 injections (as at 11 July 2017), I think it's safe to say I'm now 'at home' with Lanreotide (Somatuline Autogel - Somatuline Depot elsewhere).  I'm looking forward to celebrating my centenary 'butt dart' in a years time!

I was fortunate enough to actually have the injection…

I found some of the quotes from the recent NET SEER Database study very interesting.  The National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program is a comprehensive source of population-based information initiated in 1973 that is updated annually.  The NET study is formally titled “Trends in the Incidence, Prevalence, and Survival Outcomes in Patients With Neuroendocrine Tumors…

The following news items may be of interest:

• PRRT takes a step forward to being formally approved in USA. FDA acknowledges receipt of revised application for approval.  Click here.
• However, in UK, there is a threat that PRRT won’t be approved despite a positive recommendation by the scientific committee of the European Medicines Agency (EMA).  Advanced Accelerator Applications (AAA), the manufacturers of…