So Mum had agreed to do a drug trial, NET is rare so getting enough people for the trial was expected to take years. Mum joined a couple of years into the trail after numerous tests to make sure she was suitable, not too far gone and with adequate liver function. She seemed to really enjoy it, she loved the team looking after her, she had regular check ups, tests, scans and filled in lots of surveys. She ended up in the…
Mum's journey began before she even new it. She had problems with her digestive system in 2004, her GP diagnosed IBS and treated her for it for the next 2 years. No tests were done. Mum kept going back to the doctors and they kept treating her for IBS as her problems got worse.
After a disastrous holiday in Portugal where she was very ill on the flights both ways and for the most of the holiday (she assumed she had…
