The Negatives are all looming back.

1 minute read time.

Yesterday I went for my planning appointment for radiotherapy.  What an ordeal. My husband said he would take me for planning appointment but cannot  take me for the treatment.  I found it all very traumatic. Hospital is miles away - and it was more sitting and waiting around.  Very little information seems to have been held in my mind. Eventually after CT scan and tatoos I was given a list of 46 appointments. Some morning, some afternoon, some physio, some oncologist appointments. Because I have breast cancer on both sides I have two appointments daily for the radiotherapy.

Came home in tears - do not know how I can cope.  My husband has told me I am  ungrateful - well that just makes me cry even more. I am not ungrateful I am just scared and feeling lost once again.

People have offered their services to take me on the odd occasion if they are available - but it is so far away and the number of apppointments - somedays I have three - it just all seems wrong and unfair that they would have to put up with me crying and being upset. And as husband refusing to take me I had no alternative but to opt for the hospital transport.

I know I should be positive and should be not so ungrateful - please give me a shove in the right direction!

Thanks

Maralyn

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Anonymous
  • FormerMember
    FormerMember

    I had to use the hospital transport and they were fantastic, they take the aggro out of getting there and back.  Its not easy having to go every day but its something you have to do. Be strong, you will come out of the otherside.   im shocked by your husbands response whats his problem?

    xxx

    • FormerMember
      FormerMember

      Hi,  i dont think you are being ungrateful at all, i think you are expecting some love and support from your husband. Not sure how he would feel if he was in your situation. Maybe he should be a little grateful that he isnt in your shoes. I am sorry if this offends but i think fair enough if he cant take you for whatever reason, but i think to make you feel bad about how you are feeling is an absolute disgrace. All i can say is big hug to you.

      take care

      anna x

      • FormerMember
        FormerMember

        So sorry you are feeling down. I think the radiotherapy department should be able to offer a regular time for your treatment. When I had mine they asked me what time of day would suit me best and I chose late afternoon. It was only on the odd occasion when a machine broke down or something that they changed the time. I, however, changed the time once for personal reasons and they were very good about organising the change. As for hospital transport, my sister-in-law used it and opted for early morning appointments. She said it worked like clockwork - a little bit of waiting around while other patients were collected or dropped off but she said she found the support offered by the other patients was very comforting. You may not feel much like doing so right now but I would get a little assertive (or take someone else who will do it for you!) with the radiotherapy department and make appointments to suit YOU.

        Does your husband work or is he retired? He may be excused if he has to juggle a job but if he's retired... well words defy me. If he was mine... no, I'd better not say!

        Best wishes,

        KateG

        • FormerMember
          FormerMember

          Hi, I'm sorry to hear you're feeling low again. I think we all know what that feels like. Life is a rollercoaster of emotions at the moment.

          Is there a reason why your husband can't take you? Calling you ungrateful is extremely harsh and unwarranted. It's a tough time. We are all here to support you though, especially whilst you don't seem to be getting support at home right now. Keep coming here for it and hopefully we can all help you keep it together enough to get through all this.

          ((((Big Hugs))))

          Monna xx

          • FormerMember
            FormerMember

            Please get in touch.  I know how you feel. husbands are strange beings at time.  At the moment I wish I had one, haven't had one for many years.  Please get in touch.  If you want to e-mail me its chris.whitmore@hotmail.co.uk

            Cheer up.