Sitrep1

1 minute read time.

Hey, I'm new to blogging, I'm matter of fact & no-nonsense. The description of this blog sums it up, really.  Except it doesn't tell the whole story. 

Back home 2 weeks now, feeling frustrated at not being able/allowed to do what I used to, i.e. to & from nearby Dumfries (25min on bus from home in Dalbeattie) to visit my mother, browse shops, pick up cheaper food etc, and volunteer for Oxfam.  Still, now have something to focus on - radiotherapy for 6 weeks from 13 Aug. 

The op last month (4 weeks ago Monday) removed all the carcinoma and 52 lymph nodes... one of which was "dodgy" (haha, i.e. had cancer cells), hence the radio.  I feel as though I will just have started to recover from op when I take a step back with radio.  

On the bright side, I did manage to recover "ahead of the curve" from surgery: my trachie site is very nearly healed over, I am told that my speech is good (just a lisp and some drooling..) and you can barely see the tendon in my left wrist from the graft site for reconstructing my tongue.  Which means that the title of the blog isn't strictly accurate - not 100% tongue now, really... will have to think of some hybrid name.!

Eating. that's a major thing now. I so miss my usual, predictable diet of yogurt, granola, crunchy salad and occasional chewy treat (that's toffee, BTW, not pet chews :-)  ). Am getting seriously bored with mashed potato, soup, porridge. Not yogurt, though. Might just about get a couple of days when I can tentatively masticate something with my remaining teeth before radiotherapy makes it painful to even swallow (no chewing yet because they had to cut open my jaw to get at the tumour way back just before the tonsils start).  Oh well, it's amazing what you can do with a blender, and besides, it's still better than an NG tube.

Away to channel my Inner Tiger and feel positive, despite Husband being sick in next room.

Anonymous
  • FormerMember
    FormerMember

    Hello Watertiger ... it sounds like you are doing very well after your surgery, but I know what you mean about food. As a floor of mouth cancer survivor I have been living off soft food for six years now but then after a nasogastric tube I shouldn't complain ... a thousand and one ways with mash 'n mince ? !

    Yes, my tissue and skin graft was taken from my left forearm, too ... but the scars have healed pretty well really. It can be a bit of a long-haul journey but you can get there and there's a lovely bunch of folk over in the Head and Neck group ... so pop over and join in, you don't have to be alone in this x

    Joycee x