Wow, can't believe that so many have actually read my ramblings and taken the time to comment. I thought I'd been such a mardy bint! Thank you soooo much!
We went to the hospital yesterday both quietly contemplating what was going to be said. Clinic was only 30 mins late (was over an hour last time). We didn't see the lovely Prof but one of his registrars which I think is always a good sign when they delegate. I don't know if all the doctors are the same but ours seem to get us to repeat everything first and really draw it out before giving you the actual results. Bit like on a previous visit for scan results when they started asking DH if he'd had any back pains and if his stomach hurt so straight away we're thinking that it's all gone horribly wrong and then while we were bracing ourselves for the bad news she breezes out with 'Your scan was absolutely fine, no change'. Why can't they just say that first and put you out of your misery, give us the good news first and then we'll make small talk? Yesterday was the same the doc who so ridiculously posh it was almost fake sounding and who quite bizarrely carried her handbag in and out of the room with her (maybe the Prof is not to be trusted?) Anyway she goes on for bit about Sutent side effects and then asked why we'd stopped for a longer break?!? HELLOO because you said there's no point until the liver thing was identified to which she says 'Yes that all fine, nothing to worry about' Again why don't they just say that first?
We were both quite shocked at the good news having thought the worst and planning an imminent Caribbean escape with our DS who is 5 but DH's plan is to have two more courses of Sutent, then go away to Mexico> We were booked to go last year but it got cancelled because of all the swine flu! Because of DH's cancer we went for the Dominican as an alternative on the same dates and the weather was rubbish. Still sunburn is never a good look.
We toddled off to the pharmacy much to their annoyance because it was five minutes before closing and the rather uppity young girl asks me if DH pays for his prescriptions, I was very tempted to give a snappy 'have you looked what the prescription is for?' but instead I politely showed his exemption card and shook my head when I sat down. Later that night I'm gathering the collection of pills for DH when I noticed that he's been given the wrong strength. Instead of 25mg he's been given 50mg which combined with the 12.5mg would have knocked his socks off, so much for the careful checking and double checking of the staff who'd signed the box. Bet it was the stroppy one from the start! DH went back this morning to change them and he's been promised a full investigation and that we'll hear from them. Bet we don't! I emailed the Prof though to make him aware because it's not exactly cheap stuff to have to chuck away if we had opened it and it really is bad, DH is as blind as a bat and would never have spotted it . 'No, there's nothing wrong with your liver but we'll just give you an overdose'
I told Sam that the tablets had worked and that 'Daddy is a little better' and is having some more. We are very open with him about hospital appointments and so on but he doesn't know how bad it is. My mum is so funny, she talks in cryptic code when Sam is there. We told him about our friend who died in the summer from a brain tumour and explained about him having something growing that stopped his body from working and he kind of accepted that but we have only said that DH has a poorly shoulder and leg. That's all we can really say at the minute because when everything works in sleeps the whole concept of time doesn't quite fit in with telling him that his Daddy isn't going to get better. He'll want to know how many sleeps are left and if it will be before Santa comes back!
Also feeling very sore after falling on the ice an impressive three times walking back from school yesterday morning, on the plus side I think I'm closer to my 10,000 steps because I'm taking tiny baby steps everywhere - does that count? Roll on spring!
Off to make a brew and assist my young Jedi on Lego star wars, he is truly addicted but it encourages him to get dressed very quickly so he can have a play before breakfast so thats a bonus. Very therapeutic this whole blogging thing, it's like being a teenager again with a secret diary!
Lots of love to everyone xxxx
