More Acid Reflux

3 minute read time.

Well I haven't done a post for quite a few days now so I thought I would write a quick update of how last week went.

All in all it hasn't been a bad week. Sal still has part of her surgery wound that hasn't healed yet and that is the main issue right now. The surgery wound healed but when she was in hospital last cycle a 1 inch section of it came apart and got slightly infected. It hasn't really healed much since then. No one at the hospital seems concerned about it though. They have looked at it and decided that it would be better off without a dressing and it has formed a bit of a scab but it still is an open section of the wound and just doesn't improve much. They have given her high-dose oral antibiotics (flucloxacillin 1g QDS) to get rid of the infection but this is causing Sal considerable discomfort because it gives her acid reflux. In fact, last night she didn't sleep much at all and had to prop herself up with pillows all night. Also, she is having to take her ant-sickness drug all the time too as the antibiotic gives her nausea. We will mention all this at the Oncology Clinic tomorrow when we go to get her line flushed. I am hoping that after tomorrow I can flush it for her... fingers crossed.

So, apart from that the week has been a good one. Sal felt so good that we went to the supermarket and did our first food shopping together for nearly 5 weeks! Luxury! From my perspective this is a huge relief. Not only that Sal clearly recovers to some extent between cycles but also that for a week at least it looks like I might not have to do absolutely everything myself. f course, I shall make sure she doesn't over do it, but sometimes it is the little things that take off the strain... like making a cuppa or getting her drugs ready to take. It all sounds rather silly and perhaps a little petty to be concerned over little things like making a cuppa. It only takes a few minutes and is no effort. Yet, after 5 weeks of getting up from my chair to get or do everything that either Sal or I wanted, to have a cuppa made for me is a shear luxury! I don't begrudge doing this for Sal. In fact I would do anything, for as long as possible, to make Sal's treatment more bearable, but when you are used to sharing all the chores, to do them all oneself becomes very hard work. How my mum managed brining 4 of us up pretty much on her own (my dad didn't do much except work to bring in the money) I have no idea. I now have a new respect for single parents too!!!

Next week Sal has a few things booked. Tomorrow (Monday) she is at the hospital for a few things... having her Hickman line flushed, she also has an appointment with her neurology consultant about her progress with her migraines, and she has a fitting appointment for a prosthesis until she decides on whether to have a reconstruction. On Wednesday she has a "Mini Makeover" at The Mustard Tree Centre at the hospital. This is to help with makeup and other issues surrounding hair loss on head, eyebrows etc. She is looking forward very much to that. Thursday is another Line flush but I may be able to do that myself at home. Friday is her regular progress meeting with her oncologist.

Lots going on this week then. More next weekend unless something happens before. I am updating the "Latest News" section on the right of the page every day so if you just want a quick update then that is the place to go.

I hope you all have a great week this week with all this hot sunshine (assuming you have it as we do today!)...

Anonymous
  • FormerMember
    FormerMember

    Hi to you both,

                            Firstly, I would like to say how well you are doing, coping with the upheaval cancer brings. With surgery, treatment, hair loss and the many other things to deal with, normal life seems a distant memory! It is great that you were able to go shopping together and the more you can do that has nothing to do with cancer, the better.

                              I know it depends on how Sal is feeling but if you can go out for a little while, maybe have lunch or just coffee, or even sit in the garden with a nice glass of something and relax, it really recharges the batteries. It is early days yet, but there will come a time when this part of your lives becomes background and the "normal stuff" comes to the fore, including , I am sure, many good times for you both.

                                Good luck with the coming week and I hope Sal enjoys her makeover!

                                 Love and very best wishes,

                                               lizzie xx

  • FormerMember
    FormerMember

    Hi,

    Glad Sal is having a better time of it this cycle. It is good for Sal to be able to do things on good days and to be able to do them together is even better. As for the acid reflux I to suffered from that and was told by oncologist that the chemo drugs can aggrevate it. He then prescribed Omoprezole which as helped a great deal.

    The makeover session is great and really helps you feel better, I hope Sal enjoys it as much as I did.

    Enjoy the rest of the weekend and the weather. Love and hugs to you both Amanda xx

  • FormerMember
    FormerMember

    Wow! You are soooo supportive, it is wonderful. My partner was very supportive too, I wish he could have written things down as  you do, I never really knew how he was feeling or thinking. I wish you both well and send you lots of love and hugs. Julie XXXXX

  • FormerMember
    FormerMember

    Thanks for your kind words and words of advice. They are all very helpful :-)

    Sal has been on Omeprazole (and also Lansoprazole which is similar) for ages as it is part of Sal's migraine treatment regime so it must be 5+ years! You are right... it does help a lot but it still is bad even with it, I am sorry to say.

  • wishing you both a positive week