Wednesday October 13th - It's a beautiful day but my heart is breaking!

2 minute read time.

It is another beautiful day.  Mum slept thru the night and I at least got some rest in a proper bed.  Ellie said mum slept soundly apart from a couple of times when she was a wee bit restless.  The carers came at 7am and gave her a wash in bed.  They didn't get her dressed as she remained asleep throughout and is still sleeping now.  They tried to get her to take her meds but she said NO and has had nothing to eat or drink.  She seems very peaceful when she's sleeping, which is a blessing as she becomes so agitated when she's awake.

Nicola, the district nurse phoned this morning and I explained about mums problems with swallowing and my concern that she won't take any more meds orally.  She is hoping to come out with the GP today to review her medication with a view to stopping anything mum doesn't need and giving her what she does need either by injection or syringe drive.

My aunt and uncle have just set off back to Scotland.  They wanted to stay but Rebecca is 6 tomorrow and I know she'd miss her gran and granda so have insisted they go.  We were all very tearful and I tried to wake mum to tell her they were going but she is sound asleep so they gave her a wee kiss and told her they'd see her soon as they'd be back down.  How I wish she had spoken to them as I could see their hearts were breaking having to leave her.  I'm crying now just thinking that it might be the last time they see her.

I have sent my uncle up home with instructions for arranging mums funeral at home.  My dads ashes were scattered in the crematorium rose garden and I want mums funeral there and her ashes scattered where dad is.  My uncle is an atheist and can be very dismissive of my, or anyone elses faith, even though he was brought up in the church as mum and I were.  I was worried he would start asking why I wanted a church of scotland minister etc. but he didn't and I'm grateful for that as it's really important to me and to mum.

So now it's just me and mum and to be honest I need her to myself for a wee while as much as I'll miss them and the support they've given me.  I'm not completely on my own as Gillian is only next door and I've got plenty of support from the various health professionals who are looking after mum.  They are all fantastic and I thank God that I brought her home and she has such a good team looking after her and keeping her comfy.  I can't fathom why the care as an inpatient at the hospital is so lacking and yet the care from those in the community and in oncology is outstanding but I am grateful that it is.

The sun has shone all week and there isn't a cloud in the sky this morning.  How I'd love to take mum out for the day.  My heart is breaking but mum seems peaceful which I'm thankful for.

Anonymous
  • FormerMember
    FormerMember

    Hi Caroline.

    My thoughts and strength support and Love are with

    you at this time, Remember your never alone.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Mum has not responded other than to take a few little sucks at an ice pole.  She appears to be comfortable and that's all I want.  I am very sad but I've told her it's ok to go and see my gran, dad and auntie as they'll be waiting on her.  I've also told her not to worry about me as I'll be ok.  I suppose now we just wait.  I pray that she passes peacefully.

  • FormerMember
    FormerMember

    Dear Carol

    Ive been reading all your blogs and I think you are one amazing daughter. You are always there for your mum and she must be very proud of you. Im glad you got to sleep last night. Hope your mum is comfortable and in no pain. Big ((((((hugs))))) to you carol. Im nearing the end for my dad and it does break your heart. Love Teresa

  • FormerMember
    FormerMember

    Dear Caroline,

    My thoughts and prayers are with you and your Mum.  I used to just sit with my Mum and held her hand and chatted ,talking to her, telling her all the things that were important to us both and I am sure you'll do the same as, even though your Mum is so sleepy now, she will hear you and no doubt respond when she can. Just glad that she is comfortable and not in pain.

    Love and hugs,

    Rose x x x x x(((((((((((hugs))))))))x x x x x x x

  • FormerMember
    FormerMember

    Hi Caroline - I hope maybe you will understand the meaning behind words I have to say as they do not really express what is in my mind and will seem a little out of place to some.

    I think you and Your mum are so Lucky !

    Your Mum is painfree, resting and at peace - she knows you are there and watching over her and cannot doubt the love and devotion you have lavished on her - as Rose has said your Mum maybe sleeping but your words will still get through and bring even further comfort.

    You are also lucky to have some time together  with her, you have had the chance to say all you need, some never get that chance or let the opportunity slip by.  You have arranged everything both she and you would want for the Funeral. When the time is right I know that looking back to this sad time you will get some comfort from knowing no other Daughter could of done more or offered more love or care.

    Love and Hugs

    John xx