Mums legs have been fairly steady since the wobbly weekend. On Monday she was a lot better and was good Tuesday and Wednesday. Don't get me wrong her legs weren't at full strength but she wasn't feeling what she calls 'doddery'! Yesterday we had the physio and OT out and they have arranged a variety of rails, walker, stool, step etc. but they did not see her at her worst.
As mum's been ok over the past 3 days I have begun to relax and slept much better last night but today I've come home from work and she's very unsteady and says she's been like that all day. It is almost like she's drunk, a bit staggery when she walks and she is very shaky. I took her to the dentist tonight to get her denture back and she was so tentative even walking on a flat surface.
I just don't understand it. If it's the steroids why are there good days and then bad days? She is having her bloods done again tomorrow to check her sodium and urea levels which were low 4 weeks ago. I know low sodium can cause confusion and she's not confused but could it be causing the lack of balance and could that be a seperate issue from the weakness in her legs? I don't know when we'll get the rails and half step into the bathroom and I'm worrying again that either during the night or when I'm at work she'll be unable to get into the bathroom or even take a tumble like she did on Friday night.
The OT and physio tried to get her to have a commode in her bedroom just for her to use during the night and she refused point blank! I am really angry with her but I've not shown it to her. It's just that if she had a commode I would get a decent nights sleep as it is I'm lucky if I get 3 hours a night because I'm listening for her getting up and as soon as I hear her moving I'm awake. I have had to get up a couple of times to hoist her into the bathroom in the middle of the night as she's failed to get up the step. My nerves are shattered.
I can understand why she doesn't want the commode but I just feel she could have at least accepted it for a few days/weeks until the handrails and steps can be put in place. I feel really guilty and selfish for feeling like this. I said to her tonight that she might have been better just having the commode until we got the rails and the step and she said she didn't need them and I said it would allow me to sleep properly and she told me not to say that as it made her feel bad. I'm at my wits end. Thanks for reading my rant! Maybe tomorrow will be a better day!
