Saturday September 25th - Evening visiting and beyond!

3 minute read time.

Mum was still much better when I went back tonight.  She passed on the stew as she had had lentil soup and ice cream with banana, however, she didn't pass on the mullerice (apple flavour!).  She asked what was on TV tonight and got me to put it on ready for x-factor.  To let you understand she is a TV fanatic and is glued to it all day but for the past few days hasn't even seemed aware that TV existed!

After she had her mullerice she insisted she go outside for a ciggie.  What can I do?  I had to take her as she would not take no for an answer!  I had taken her own wheelchair in tonight as the ones at the hospital aren't particularly comfy or manoueverable.  I wrapped her up nice and snug and off we went into the sunny but very cold evening.  When I was getting her into, and out of, her wheelchair she seemed more able to support herself and it was much easier than it has been lately.

When we got back to the ward she repeated what she'd said earlier about getting worse since she has gone in to hospital.  I clarified that she was much better today than yesterday and her answer was 'that's good but I still can't walk!'  She seems to have lost Thursday and Friday and has no idea how confused she has been, thank goodness!

The problem with her feeling better is that she now wants to know when she can come home.  She is fed up being in there whereas yesterday I don't even think she knew where she was.  When I was leaving tonight I asked her what our phone number was and she told me adding 'what are you asking me that for I'm not stupid!'  I told her that any time she felt like it she could just give me a ring as I had paid for the TV and with it came free calls.  Just after x-factor finished tonight the phone rung and it was mum!

I can't tell you how happy that made me feel.  I asked if she'd rung on her own and she told me that she had got the nurse to help her.  No way could she have done that yesterday.  She told me she was 'just lying here in this bed' and I must admit I felt upset because she sounded so fed up.  I asked if she'd watched x factor and she said she'd watched some of it.  She wanted to know what was on TV so I told her to go to channel 5 as CSI was on at 9.  She said she would get the nurse to put it on for her and then said night night.  I've brought the phone upstairs tonight as now she's back with us I may find I get an early morning call, I'd be delighted!

Tonight I am praying that she is at least as good tomorrow as she was today. 

Finally, don't forget to keep voting for better treatment for children like wee Charly Johns who have cancer.  They really need our help to find less toxic treatments for kids.  This is what Charly's mum has to say:

High Risk Neuroblastoma has a 20-30% survival rate and an 80% relapse rate. There is NO government funding for Neuroblastoma treatment and NO drugs companies are willing to research as they cannot make a profit off of our  children.

$600,000 dollars is needed to fund this treatment, the Pepsi grant would mean they are half way there.

So, I am asking you - no, begging you - to take a moment to place your vote every day!

The link is.....
http://www.refresheverything.com/armswideopenchildhoodcancerfoundation

Love Anna xx

Hope you don't mind me copying and pasting the above Anna.

Thanks everyone.  

Anonymous
  • FormerMember
    FormerMember

    great news again hunni so pleased you can see the improement as to me thats better than the figures iyswim loe and hugs

  • FormerMember
    FormerMember

    Caroline - what fantastic news!

    A marked improvement in such a short space of time - why? Maybe her sodium and potasium levels are much better and of course, what a difference Juliette (the kind and caring named nurse) has made to your Mum when you're not there! And to have your Mum phone you this evening too. It must have been so good for you to hear from her like that - maybe you'l have a good nights sleep now? I do hope so.

    I shall also pray that you have an early morning call from your Mum - but not too early - and that you'll find her even better tomorrow and that your Mum will soon have all tests completed and good results back. Then you'll soon have her back home, with some extra help in place if possible!

    Am also hoping and praying that the "Arms Open Wide" Charity for the Less toxic treaments for children with cancer - specifically Neuroblastoma maintains it's current number 2 ranking, or even rises to first position as both 1 and 2 are given the funding so badly needed. As you've said, it's so important and there are only 5 more days to vote and one may vote every day. Charly has made us realise how vital it is that money is found for research into this, God bless her.

    Take care, Love to you and your Mum, Rose x x x

  • FormerMember
    FormerMember

    Aww Celi I am so happy for you and your mum. Reading this brought a tear of joy to my eyes. All the best and hope mum gets home soon xxx Donna.

  • FormerMember
    FormerMember

    so pleased your mums a bit brighter  Caroline

    love and hugs to you and your mum

    love janice xx

  • you can tell by your blog this has given you the lift you needed, hope it lasts

    john