Mum didn't sleep well last night as she was very apprehensive. We arrived at the chemo suite at 10.45am this morning to be told there had been a crash on the M65 and as a result the chemo coming from Burnley was delayed. Instead of starting at 11am it would now be 1pm. Linda, the nurse, took us into her room and spent about 45 mins explaining everything to us. Mum didn't like this much as she was telling us about all the things that might go wrong but accepted that although it was scary it was important for us to be aware of what we should do in certain situations such as raised temp, things that may happen to her blood count, compromised immune system etc. Linda then gave us a booklet with all the information she had given us in it. Mum won't look at this but I have already had a good read. We then had lunch and just after mum started her treatment.
Anybody had this? Carboplatin and etoposide? I hour of one then one hour of the other. She was also given antisemetics (is that right? to stop you being sick? don't know where i got that word from actually!) and steroids (can't remember why). Mum was fine she said she didn't feel anything, no sensations of any sort. She was very tired when we got home so ate her dinner and has now gone up for a lie down. So now it's a case of wait and see how it effects her in terms of side effects. Linda said she would phone tomorrow just to check mum was ok.
I'm a bit disappointed with mums specialist nurse as she told us to leave a message on her answer machine if she wasn't available and she would always get straight back to us but I rung on Thursday and then again today and she has not responded. It wasn't anything that urgent although we do need a blue badge as mum is struggling to walk far and I wanted some assistance with completing the form correctly that she had arranged to be sent to me. The chemo nurse even rung her twice today but still no response. Well that's it for today, just praying mum has very little if any side effects.
