Friday April 9th - Feeling a bit flat, what's that about?

1 minute read time.

After being so buoyed up yesterday with mums good news both of us have been a bit flat today.  I don't know how to explain it.  I suppose it's the reality that there is no guarantee that NED today will be NED tomorrow.  Does that make any sense?  People have been saying to mum isn't it wonderful that it has gone, and of course it is, but we know it's not gone for good and it's hard not to worry about when, and where, it will rear its ugly head next.  We should be dancing for joy but........

Mum is still very tired and had a bad sweat last night, the first for a while.  This immediately worried me as it's a symptom of lung cancer.  So why is she still having them if there's no cancer there?  Maybe the chemo also causes it? I think someone told me that. I'm sure the chemo has not all left her body yet as it's just two weeks since her last one?  Am I clutching at straws?  Worrying unnecessarily?  Since she got the chillow she has mostly been bone dry in the morning or, at worst, slightly damp but this morning she was soaking wet.

I really need to get a grip and enjoy my mums reprieve.  I feel guilty knowing how many of you would love to be told you, or your loved one, is NED.  Sorry for the rant think I just needed to verbalise how I feel to try to make sense of it, although I haven't.  Made sense of it that is!  This is a steep learning curve that's for sure.

Anonymous
  • FormerMember
    FormerMember

    I can understand how you could feel like that. It's almost as if the news is so unexpectedly good that your mind says not to believe it, in case you are let down or something. That should pass as you get used to it. I saw a post that said the chemo takes 6 weeks to clear, hence the cumulative effects, so your Mum is bound to still have it in her system - the good news has probably been a big shock to her as well - I doubt that the night sweats are down to cancer, but much more likely to the emotional upheaval she has just had.

    I also have a personal gripe about how doctors all seem to err on the side of the negative these days. Eg. to constantly refer to a cancer as "terminal" is neither helpful nor accurate. People do survive it, maybe fewer than with other types, but then we are all "terminal" whether we have cancer or not! One of the drawbacks to sclc is how it can appear in the brain later and this accounts for the poor prognosis - however the chances of that after RT are now really very low and I don't think all the statistics take account of that, or of some of the other advances that have been made.

    You have spent a lot of time mentally trying to prepare yourself for the worst news and suddenly asked to switch gear and celebrate good news! It is bound to take a bit of time to get used to.

    Love Evangeline XXX