Feeling scared and not knowing what the next week brings

2 minute read time.

I found out that my mum has 4 tumours in her brain after she was had a seizure now as we know - Jacksons seizure. That was around 4 weeks ago and every week we are seeing her change and her life become more difficult. The first couple of weeks were spent discovering if she had cancer elsewhere in her body. Now we are assured she hasn't and it is the ones in her brain alone. She had to undergo a biopsy and they decided that RT was the right treatment for her. I don't understand the choices of treatment but just hope they are doing all they can.

We are a strong family, i have 2 elder siblings - one sister, one brother who are in Sheffield where my parents are. I live around 2 hours away and that in itself is proving to be very difficult and making me feel quite helpless. 

Non of us know what to expect and each week we think we have had the worst and something else happens. My mum started Radiotherapy last Thursday so I am trying to hang onto the positive that a 'treatment' has now started and we are not just seeing her go down hill but there is hopefully an up hill. 

Like so many others as i have read on the forums who have so many questions, well so do we. I dont know what to expect from the treatment or her life going forwards. Thinking just one month ahead is very scary at the moment. 

I am getting married in September and never dreamt that there would be a possibility that my mum would not be there with me but the last 4 weeks has taken my thoughts to just that. There are things i never want to say outloud as i am sure many others are in the same boat. I am hoping that being a part of the on-line support with give me some aid in the horrible time. 

Mum will be having RT once again tomorrow and we will take each day as it comes. It is now at the point where she cannot be left at home alone and non of us are sure on what to do. My brother and sister are taking her to the hospital tomorrow and are going to ask some questions as to what we do. So i will be hainging on the phone to see what happens each day. 

I plan to go and help for a week next week but we literally do not know what position we will be in from one week to the next.

I feel as as though a big train as just railroaded us and changed everything forever - will we ever get our mum back as the happy, bubbly, confident and independent person she was?!?

Thank you for listening and i am sure i will be blogging again soon.

Nic Noc

 

Anonymous
  • FormerMember
    FormerMember

    Hi Nic Noc,

    My world fell apart after being told I had one brain tumour, I guess its the same feeling with four or maybe worse?  

    I went through 33 sessions of RT relatively easily - no headaches, fatigue or irritation to the area being zapped - and I hope the same is true of your Mum.

    I did struggle with the hairloss, it was devastating (to me) and even after 1yr post RT I still have to wear a wide fabric headband to hide the short patchy hair that regrew.

    Attitude does help a lot people say, so stay strong, this is a turbulent journey you are starting.

    Love & strength to you and your family.

    Debs xx

  • FormerMember
    FormerMember

    Hi Nicnoc,

    You will all need to keep in touch as a Family,talk whenever you can stay positive and strong for eachother and for your Mum. I dont know if you will get your Mum Back the way she was,I dont think anyone could answer that question. But you just dont know. You seem to be a close Family that will help a lot. Take care and I hope your Mum improves.

    Wishing you and your Family the best for your Mum.

    You are all in my thoughts.Sarsfield.xxx

  • FormerMember
    FormerMember

    Thank you for your kind thoughts. I need to pull strength from anywhere at the moment.

  • FormerMember
    FormerMember

    Hi NicNoc, take just one day at a time. Enjoy every precious moment with your Mum and keep posting. The thread 'we talk Brain Tumours ' has some lovely people with a vast range of experience.Post there and someone will soon be along with some support. Good luck x x