I've not updated recently since my forth cycle, mostly as I just couldn't get the motivation to.
As those who read the post know I had a pretty rough time with sickness, nausea, on my third cycle. When I went for my forth cycle pre bloods we discussed at length what could be done and the docs where pretty much of the opinion I don't need to have that much sickness and I was just unfortunate the anti emetics I was on, which they said were the best ones, just weren't doing it for me. Now the discussion went around another two drugs. One a steroid and another that would make me drowsy (according to them)
Now this is how it went. The 4 days of chemo drugs went as usual felt weak lathargic just what I would expect. I was taking ALL the anti emetics including steroid etc, I was fine slight nausea but no sickness which was good. Chemo started on the Wednesday so last fluradabine was on sat afternoon. I had been taking the steroid at 2 pm not 4 pm as prescribed as they had suggested it may make me fidgety and keep me awake. I did ask if I should then take it at two and they said yes fine. Sunday night I went to bed feeling tired and did not close my eyes literally the entire night I felt like shit on the Monday as I hadn't slept and added to that I was like a hen on a hot griddle. Couldn't rest couldn't sit at peace Gail was getting the brunt of it to as I was argumentative also. The Monday night I slept about four hours but not solid, in bits. So felt worse on the Tuesday. Tuesday night again not a wink of sleep. So I called the hospital, I should say I stopped taking the steroid on the Monday morning as I knew they were the culprit. The hospitals respons was drink lots of water to flush it out. If I still don't sleep until Friday give them a call. I didn't get a nights sleep on the Wednesday or Thursday. I just couldn't be bothered calling them so just drank loads of water. It was Saturday night before I actually got a sleep.
I'm back to normal now, feel fine just very tired but no nausea or sickness.
I will discuss this with them at my pre bloods, but I don't understand why during chemo when we need our strength they would prescribe something like that. I will put up with the sickness next time lesser of the two evils better to get a sleep and be sick during the day rather than be awake for almost four days and feel terrible into the bargain.
Take care everyone.
