The financial cost of cancer

2 minute read time.

Recently I’ve been filling out a questionnaire as part of a research project I’m helping with.  One of the questions asked me to calculate the financial cost to me of my cancer.  There was a list of all the items I might want to consider in the calculation.  Some are obvious, like loss of earnings.  Others take a bit more working out.  For example my husband has driven me approximately 2500 miles for hospital appointments, but I can only roughly calculate how much petrol this took.

Then we have to consider what has been essential and what was just something nice to have.  Scarves illustrates this point well.  I have been told a scarf is vital as it keeps my delicate scar tissue warm in winter and protects it from the sun in summer.  So a couple of scarves could probably be considered essential. However I seem to have acquired a drawer full of them.  Not all essential but definitely nice to have!  Especially my latest one which is cream with a few multi-coloured flowers and butterflies on it. 

I’m also not sure if I should count all the items which were purchased in an attempt to cheer me up and get me through my treatment.  Things like books, jigsaws, music downloads, bird feeders, cuddly toys and a widescreen TV to watch Wimbledon on.  Probably not, especially the TV.  I do feel though that they were crucial to my wellbeing at a difficult time, and perhaps they helped contribute to my recovery. 

It’s getting to be a difficult calculation.  I wasn’t asked to consider money saved, but there has actually been a fair bit of this.  For example I have had to buy special toiletries and clothing, but it was instead of my usual purchases and it probably worked out cheaper.  We lost the deposit we’d paid for our holiday, but we saved considerably more by not going.  I’m not even sure now that I should include the petrol for the hospital trips, as we’d have used more than this if we’d had any social life over the last year. 

So let’s just settle for loss of earnings then, which is about £5,000.  That doesn’t sound too bad and it’s considerably less than I’d have had to pay if we didn’t have the NHS. 

I’m still struggling with two more of the questions.  I have to calculate my health and my quality of life as percentages.   I’m finding that very difficult.  I don’t feel unwell but I still get tired and I certainly couldn’t do a full day’s work.  My quality of life when I’m at home is great, but I have little quality of life outside the house as I don’t have the energy for a social life.  So let’s settle for 50% so I can pop the questionnaire in the post and get back to watching the tennis. 

Anonymous
  • FormerMember
    FormerMember
    Margaret I too have far to many scarfs,I'll savour the day they go round my neck instead of my head,that's when touch wood I'll be back working,loss of earnings you put at 5 grand,I think a year out of you life to get you better is well worth the loss,mine is well treble that, plus loss of husbands wage having to take time off for appointments,I also was going to lose my deposit,so I just paid £100 to transfer my holiday to next year,,after all I'm hoping to be fit by jan 2015,it's something to look forward to,adult only holiday,it's what keeps me going on my bad chemo days, I'm on cycle 3 next week,HALF WAY THERE,my sons remind me,yeah I say cursing under my breath,each cycle I dread as no matter what I do I end up with one thing or another, ulcers thrush no sleep, ,do I ask for medication just incase I get it next time as I can't deal sat in the doctors waiting room feeling so ill,I also don't want to suffer anymore than I have to,?
  • FormerMember
    FormerMember

    Hello Julie.  Yes I have certainly got off lightly financially compared to some people.  I did have a Benefits Check done to make sure there wasn't anything I could apply for.  I should have mentioned this in my post because it can be worth doing this, there were some benefits I had never heard of, unfortunately I wasn't entitled to any of them.

    You were saying about medication.  You certainly don't want to be suffering if you don't need to.  I had painkillers etc prescribed just in case I needed them, most of them never got used but I think it helped me to know they were readily available.  So I would recommend you have a chat with your team and see what they can do.

    Take care and best wishes for the rest of your treatment. x

  • FormerMember
    FormerMember

    Margaret:

    Thought I would give you a US comparison (might make the NHS look good).

    Luckily, we have excellent Private Health Insurance through hubby's employer otherwise my hysterectomy alone would have cost in excess of $80,000  (and that didn't cover the 5 days in hospital!)

    The surgery/hospital stay cost me $500 co-pay

    surgery to have port installed $250

    visits to Oncologist $40 x 9 = $360

    lab work $25 x 36 = $900

    prescriptions 4 x $15 each month for 8 months = $480

    injections to increase white blood counts $25 x 5 = $125

    weekly round trips of 80 miles for doctor/lab work for 36 weeks = approx. $540 petrol

    25 daily round trips of 40 miles for radiation = approx. $175 petrol

    Total $3,300 (approx. $2,000) for 8 months of treatment

    Still being alive today 3 years after diagnosis = PRICELESS

  • FormerMember
    FormerMember

    Hello usascot. 

    Yes we are so fortunate in the UK to have the NHS.  The cost of medical treatment is frightening.  But, as you say so well, you can't put a price on recovery.  Take care x