Feeling tired Sunday 4th August 2013

2 minute read time.

It's Sunday morning and I am very tired.  I probably only have myself to blame.  I think I have not been resting properly.  I suppose I have done just a little bit too much housework and tidying up since Thursday.  My husband is going to visit my parents this morning, so I decide I will go with him.  Yes it will make me sit still for a couple of hours, but it doesn't help my mood. 

Firstly I am frustrated.  My parents live half a mile away from me.  It is a ten minute walk.  But of course we have to go in the car because at the moment I  can't even walk round my garden.  (I know this because I have tried.)  So we get there and of course they are delighted to see me.  But I can't give them a hug or kiss, strict orders re low immune system.  I can't even say much to them, hardly any voice at the moment.  Can't be of much practical help to them these days, professionals do most of that for them now.  I feel guilty as it is costing them money, and I even feel a bit inadequate as of course these people are much better at cleaning, ironing, gardening and hairdressing.  So I sit quietly in the corner, mainly smiling and waving at them, whilst my husband does some chores. 

But do we come straight home?  On no, I have this wonderful idea, I want a little drive round the town.  It will lift my spirits.  But of course it doesn't.  I just feel worse when we drive past my office, all the shops I haven't been to in weeks, and all the restaurants I wish I could be eating in.  We get home, I have my tube feed and I am sent to bed for a nap. 

Have nap.  Still tired.  Look out of the bedroom window.  I can see people on the way to the beach.  The beach is a four minute walk away.  I miss the beach.  I want to go now.  But of course I can't.  I also have a bizarre craving for a Big Mac and Fries.  This will not go away.  It is strange because I haven't  been to a MacDonalds in years.  I am not keen on fast food, any processed beef product, or those thin salty fries.  I like big fat chips with no salt.  But I don't fancy those.  I want a Big Mac and fries.  Now.

Husband administers my next tube feed and I am sent back to bed for a further nap.  The poor man has the patience of a saint.  I remember dozing off to sleep with him patting my hand and promising to take me to MacDonalds as soon as I am better. 

Anonymous
  • FormerMember
    FormerMember

    Hi Margaret,

    I remember our last communication you was doing well and not needing your feeding tube.  Now I guess you are.  Just try and think that it is just a process to go through until you are better.  You need hope.  Is there anyway you could put the flavour of the big mac and fries into your mouth?  I suspect you are craving salt from not drinking and the fat from the burger, I guess we eat more different types of food then we realise, and if you're restricted to what is in the bag, which will be nutrionally correct I would have thought.

    Keep your chin up, we're here for you and reading your story.  You are an inspiration.  And enjoy your own bedroom, sounds wonderful!  I'd paint it, go for pink.... x

  • FormerMember
    FormerMember

    Hello mollyb.  Good to hear from you again.  Sorry for not acknowledging you earlier, some notification emails seem to be going astray and I've only just seen your comment.  Yes I've been completely reliant on the tube for about 4 weeks now.  But I shouldn't grumble.  A friend was in hospital for 6 months, with anorexia, hooked up to one of these things, and she constantly reminds me how important it is.  But it is time consuming.  In my case it is 4 slow feeds a day which take an hour each.  The bags hold a sort of milkshake, but it's all sorted by a dietician so it has everything I need.  At least I am saving on food bills!  I crave different foods each day now, gone right off the idea of burgers, yesterday was rhubarb crumble, I am thinking about battered cod today.  My husband was unimpressed when I mentioned your remark about the bedroom.  He says I am not to get too comfy in there, so no chance of redecoration, blue will do for now.  Many thanks for your kind words.  xx