The long Wait

Less than one minute read time.

I don't know how I am going to cope tonight.  When I had my other cancer things seemed to happen very quickly but not this time.  I was told on the 14 of November that I had a Liver lesion and I have still not been told what cancer it is.  They have mucked about with PET scans and eventually took a biopsy 10 days ago and although I realise it is Christmas and New Year nobody has been intouch not even the Macmillan Nurses.  I phoned today to ask if they had had any results, they have been told verbally by pathology and they will probably discuss it at the nex MDT which probably won't happen until the 8th of January.

I just can't handle any more cancer and trying to keep a brave face is so hard. 

Anonymous
  • FormerMember
    FormerMember

    Hi there,

    Just wanted to say hello and to give you a big hug. The waiting and not knowing is the hardest part... I have anal cancer but so far all is doing ok... next check up in a couple of weeks. I am sorry no one has got back to you and it is even harder when doing things during the holiday time.

    All I can say is that you could take it as a reassurance that if they are waiting a couple of weeks, then they are not in a panic to start doing something. I know their timescales are often not the same as ours. It took me 2 months to start treatment after being told I had a tumour there...

    I hope you can find some distraction until you get some news. Do you have a specialist nurse you can ring? I had a colorectal one who was great and chased things up for me whenever I wasn't sure what was happening.

    Wishing you all the best and a huge pile of courage.

    Little My x

  • FormerMember
    FormerMember

    Hi Little My

     

    Thanks for that I just needed to have a rant. 

    I know what you are saying about they are not panicing and your right that is good but I am I can not get it out of my head that this time it is terminal.  My anal cancer the last time was grade 3 n 2 which I believe is quite bad and the liver one has developed 2.5 cm in just over 10 months.  Comparative to the size of your liver I don't think it is great big except in my head.  

    There is realy no one to contact as they are all on holiday.  I might take a trip down to CLAN our local cancer support and have a chat to them tomorrow.  

    I hope your next appointment goes well and you sail through the next few years.  My oncologist says that if it has not returned withing 3 years then it will not so my fingers, toes and everything else is crossed for you.

    Big hugs you have lifted my spirits.

     

    NessFrog