3 minute read time.
I'm not sure where to begin with writing this but I feel it may help sharing what we are going through. It all started when my brother Began vomiting regularly, he went to visit his gp and he told us that he had gallstones, he did not tell us the his gp had advised him to visit the hospital as she was obviously concerned with the vomiting and that he had started losing weight quite rapidly. It may seem strange that he did not share this but the previous year my mum had suffered heart failure and required regular care, although my brother has bad learning difficulties he is a big support for my mum and helps her with various tasks so he must have felt that he did not want to cause her any worry or distress. As his weight continued to drop quickly we got him an appointment for an MRI scan, it was after this that the doctor said that he would require an endoscopy. I took him to his appointment and he was collected by the nurse and I was told they would call me to collect him. When I went to pick him up I was told the dr wanted to speak with me. We were taken into a room and the dr was joined by a nurse, the nurse gave me her card and it was only when I read the words Macmillan nurse that it hit me. I tried so hard to contain myself but my brother remained calm throughout. As the sample taken during the endoscopy could not give enough clarity he was booked in for a biopsy, by this point it was made clear to us that it could be a lymphoma type of cancer which could be treated or worse an untreatable stomach cancer. We had to wait 2 weeks for the results during that time we were told that the cancer showed signs that it may be the lymphoma kind however when we went for the appointment we were given the devastating news that it was an aggressive form of stomach cancer which was untreatable and although chemotherapy could be done it may only very slightly prolong life and there was no guarantee of this. Today my brother was fitted with a stent so he can he more solid food, something he has not been able to do for a couple of months. He still remains incredibly brave and at the moment he is continuing as nothing is wrong. I know people think that because of his disability he does not really understand what is going on but he definitely does, he is just refusing to give up, and I know he is doing it not just for himself but for me and my mum too. I know I have to stay strong and support both him and my mum and seeing him refusing to be beaten down by this is giving me the strength that I need to do this but I'm still finding it so difficult to keep my spirits up. The support I have received from everyone has been incredible, the drs and nurses and the Macmillan people have been great in always being willing to answer my questions even if I ask the same thing over and over again and my fiancé has been a rock for us all throughout. I know times ahead are only going to get more difficult but there's no way I can give up or buckle under the strain as its my brother who is the one facing this illness in the bravest way possible never complaining or being down. All his life he has had to battle and it breaks my heart to see him go through this but he is an inspiration to me and without doubt he is my hero.
Anonymous
  • FormerMember
    FormerMember

    Hi John,

    Welcome to the Online Community. I'm so sorry to hear about your brother. It sounds as though you care about him a great deal, and it's really hard for you to watch him go through this.

    I hope that it helps to be able to share things here on the site. You might find it helpful to join and post in our Being a Relative group, where you can get support from other members whose loved ones have cancer. You are also welcome to join our Stomach Cancer group, where you can find other members with experience of stomach cancer.

    I'm really glad to hear you have had good support from your brother's medical team, and from Macmillan. I'm not sure if this means you have used our free Support Line? If not, it's 0808 808 0000 (Mon-Fri, 9am-8pm). You can call to ask a question to our team of experts, or if you just need someone to talk to.

  • FormerMember
    FormerMember

    Wow your brother sounds like an absolutely amazing man.

    It's so sad to hear of his cancer, how old is he?  I don't think any cancers are nice but I think some are better than others, particuarly ones that allow you to continue to lead a fairly normal life (eating and stuff). I hope they manage to give him a good treatment plan and keep him comfortable.  I'm sure his positive attitude and will will go great strides to keep him relatively well for a many months to come. x