I am a very calm and patient person, however since I started this cancer 'journey' there are a bunch of things, particularly admin stuff from the NHS, that really get on my nerves.
Getting from sympton to haematology referral took a long time and during that time I learnt how slow and complicated the process is. But then you think, okay I am in the system now, things should go smooth right? During the treatment everything went smooth, all appointments were made on time, didn't have to chase anyone for any test or result, it was GOOD. It was supposed to be the way the NHS should work from a patient point of view.
Still, after treatment is completed you kind of go back to a corner where you are 'secondary' again, and it is difficult to take. I have to do three month review (blood test + consultant appointment) for the first year, so one would think that it should be relatively easy to schedule a recurrent appointment, right? My last one was 3 months ago so today I rang the hospital to see what is happening. My appointment is not on the system and I am 'on the waiting list' to get a slot... This was the same last time around too, and I am thinking COME ON! we do have to deal with anxieties and intrusive thoughts every now and then and having a fixed schedule where you get checked up really helps the patient, I think. Like it is reassuring when you know something is coming up and you don't have to be chasing it yourself or you don't have to be waiting for a phone call, an email, etc.
So why is the system so complicated? Why is it a bureaucratic machine where patients have to go through unnecessary delays and issues just for the sake of it? When will we give the NHS the resources it needs?
I am not upset or anything but after a good experience with 'the system' during my treatment I am now back to a point where I am like brrrrr so annoying again, just back to being a normal citizen again! 
... People in charge need to get some more human contact and understand that little things make a huge different to patients. Feeling like you matter and getting a stupid message saying we will see you on THIS date in X months helps a lot. Just makes you feel you are important. This limbo is just bad for everyone.
And for me it is not even an important appointment, but I feel the same as I felt during diagnosis, that unless you call and you pester people, things don't move! If I didn't call, would someone even notice?
