I arrived for my 3rd treatment feeling really positive but when my blood results came back my immunity levels were low (1.4 and shouldn't be lower that 1.5) this apparently is something that can happen. Again I was reassured , I had to avoid infection and wait another week and the levels would probably return to normal. Everything else was at the right level. My hair was starting to come out so I knew that something must be working. Also I had a slight rash on my arm which is another possible side effect.
Little seeds of doubt were now starting to appear. What if I couldn't cope with chemo after all. I kept telling myself that 2 sessions were better than non at all and that I would be alright again next week. It was just going to take longer than I thought. After a couple of days I was feeling strong again. The sickness feeling was less frequent and l felt fine. I was struggling with the high temperatures outside but managed to stay cool most of the time. Again we went out a few times avoiding crowds and I had visits from friends.
Week 4 arrived and I was sure all would be well. Unfortunately my immunity was now even lower at 1.1. This is called a double dip and might be unconnected to MS. Again I came home disappointed. This really could take a long time! Next week I see the oncologist. If the levels do not come up naturally then I will have to have an injection to boost my immunity. I am going to have a less strong infusion of chemotherapy which should also help. All I can do now is wait and hope that all will be well.
My hair is really thin now but the rash has responded to E45. Today is the first time I've worn a bandana and it actually looks alright, it certainly is better than handfuls of hair coming out whenever I touch it! Otherwise I've had a good week and we've been out for lunch a couple of times which was really nice. Everyone seems to know someone who has had problems with treatment but it's hard when it's happening to me. I was so determined to cope with whatever was thrown at me but sometimes I feel really frightened and all the what ifs start creeping into my mind. Outwardly I seem really upbeat but inwardly it's sometimes just the opposite.
Hopefully next week I'll be back on track. We've just got to be patient. My family as always are being amazing.
