CLL

1 minute read time.

This week I had my telephone consultation with my haematology nurse who is lovely. While I’m talking to her I feel ok but after the call I start worrying. It’s 8 months since my last appointment when the blood counts were good with my red blood cells up. I had my blood test last week and because I feel good I thought that the levels would be much the same. Although they are still acceptable the white count is now up to 17 and the red count has gone down so my next appointment is in six months but medication is still not needed. Apparently it’s the balance between the two types of cells which is important. I can’t help being concerned again! I am going to try to eat more foods which promote red cells, probably won’t make any difference but I can try.  Since I had chemo I still have very little red meat apart from the odd steak or lasagne but I would far rather eat fish or vegetarian food now. I must get back into positive thoughts because, even though I’m 79 next week, life has still so much to offer me. Our grandchildren are growing up so quickly and bring so much love into our lives. My husband and children give me so much support I must not worry them by talking about a bad scenario. I must continue to fight this and enjoy every day. Writing this helps get things into perspective particularly when so many others are really struggling. I apologise to anyone reading this for sounding so obsessive. I just wish that a miracle cure could be found for us all, let’s hope that one day in the future this will happen. 

Anonymous
  • I wake up every day & my first thought is I'm dying! I'm 60, diagnosed when I was 59 yesterday old. I am at the stage I am accepting it....having a Dr that clearly & plainly says no to radiation, no to a trial, gets the message across! However would appreciate help not to wake up with this mind set.

  • Please try not to feel like that. Although my consultant is very encouraging and the nurse I have appointments with very reassuring  I do still have bad days. Hearing your story I’m sorry that I blog about these bad days.  Take care x