long time ago, just now...

3 minute read time.

Very tentative about this but here goes. I have been thinking about cancer a lot recently - mostly unresolved feelings welling up uncontrollably eg I put on some music to log into this site for the first time and broke down crying for a few minutes.  Then my son came in to clean his football boots so I wiped my face, thought what I would say if he said 'are you CRYING?' ...but he didn't.

He's 17 and I had cancer before he was born, so you might wonder why I am writing this now.  I cant answer that. The episode of my life I am writing about feels like a recent memory.

I lived in South London (Streatham Hill), and worked in North London (Tottenham), and I cycled to work every day.  One morning I was knocked off my bike, and my hip fractured.

 Two months later I was off crutches and off the warfarin.  A month later I was cycling again and a month later I started getting sciatica.  I saw an osteopath (Jeremy) who spotted an overgrown mole on my back.  You should get your GP to look at that he said.

I hadn't used the NHS that much but had an impression that waiting times were long.  My GP got me seen at St Thomas' in a couple of days - that was scary.

It was November - bonfire night and I was going to the big event in Lewes, where my partner's mum lived.  But in the afternoon, I was lying on a … well it was a metal table...on my front, aware of the two surgeons who were taking a biopsy from my mole.  I could hear their conversation - which had nothing to do with me and everything to do with their plans for the same evening.  I could hear tissue being torn from my back.

They sealed me up again and off I went to Lewes. Felt Ok but later in the middle of a huge crowd, I fainted.  That spoilt the evening for a few people who had to get back to my future mother-in-law's house and goodness knows what my future brothers-in-law thought about this rather unmanly man that had captured their sister's affections.

A week later I was back at St Thomas' discussing the biopsy.  It was cancerous, 0.8mm deep and on the edge of the depth where they would investigate further.  However they were doing a project to investigate these small moles - did I want to participate.  Damn right I did.

A while later, I had the mole fully excised and some lymph nodes from each armpit biopsied.  This showed that the cancer - which I now knew was a melanoma - had metastasised. (I have a love/hate relationship with that word). There was cancer in the sentinel node on one side. I was told this by the surgeon who had done the investigation. Great surgeon.  Not good at telling people they have cancer. He suggested I sail round the world and gave me about two years.  My Dad was with me and I remember his ashen face.  It "should be me" he said.  Strangely, I do not remember the reaction of my mum, despite the fact that she was more expressive than he was. A year later she was diagnosed with Motor Neurone Disease; she died in 2001, and I cannot help thinking that the shock of my diagnosis triggered something that started her disintegration. Oh god, here I go again - I feel responsible for her death.  And oh god I miss her, I miss her still.

I'll write more soon but this is pretty exhausting so I will stop for now.

Anonymous
  • Thank you for your post x

    I really hope you can continue x I understand the rush of emotion you’re feeling x I’ve tried three times tonight to compose a similar post and so far have failed x Probably because I’m with my children who have no clue about my Cancer Story and I’m keen to keep it that way x I will post later.x I need to offload to people that understand if that makes sense x

    Anyway for now I’m off to take my 13 and 9 year old home after a late swim with their friend xx

  • FormerMember
    FormerMember

    thanks MamC  good to have your feedback and I SO agree you want to keep your story from your children - for now at least.  TBH I have not even told my wife yet.  If I did that then I would write for her and I am doing this for me right now as it was building up and starting to affect me in other ways. It really makes sense to share stuff here - with people that know what it is like to experience Cancer.  will follow your posts....x

  • It's almost a year since the last post. How are you getting on?