An update on my nephew. Scan results were yesterday and I went along with my sister to give her support. Nephew had been getting a bit breathless recently and sis was understandably more worried this time. The good news is though that all the scans were clear - chest/mri and heart so we were delighted. Next lot in 3 months but, for now, things are good. Feeling tearful today though the sheer relief that was yesterday but no doubt, two months down the line it will all start to build up again. I don't think this will ever get any better but maybe we will be able to manage it better as time goes on. My love and thoughts to you all out there battling this disease.
Sue
