I joined the site a month or so ago but hadn't liked to post as I felt a bit shy but am having a bad day and I know how much support there is on this site. My darling nephew (11yrs old) was diagnosed last July with Synovial Sarcoma (or growing pains as the first locum gp said). He had a bit of a sore leg - doctor, x-ray - nothing showed up. Then referred to our children's hospital where the ultrasound detected a large mass at the top of his thigh. Then on to Birmingham for a biopsy and diagnosis with cancer. From the children's hospital to diagnosis was only two weeks and it came as a massive shock -almost out of the blue really. He had the tumour removed in Birmingham Orthopaedics early August and although it all came out the margins were quite narrow. Then he started 6 cycles of chemo in September, finishing in January this year and alongside the chemo he had 30 treatments of radiotherapy, finishing on Christmas Eve. Throughout he has been magnificent and my sister has coped so well (single parent with a younger daughter). The family pulled together and tried to help as much as we could and we all took a turn with his radio visits. He has now had two sets of scans, three months apart and so far so good. He will need further treatment to his leg as nerves were removed and tissue was damaged with radio. So why the bad day? Basically I sometimes have moments of blind panic that it will come back and, to be honest, the chances with this type of cancer are quite high. I go from taking each day as it comes and thinking it can't possibly come back to thinking why wouldn't it. I am from a family that, unbelievably, cancer has never touched, (certainly for generations) and it has turned all of ours lives around and made everything so damn scary. I just wanted to write all this down really so thanks for 'listening'!.
S
