I've got him home from hospital now, he discharged himself late on Thursday night. He is very quiet, very pale - he is eating & drinking more than he did whilst he was in hospital which is a good thing. He never complains of any pain, I see him wince or take a deep breath every now & then & when I question him he says he is ok, just a bit uncomfortable. He's been getting up 4/5 times during the night for a wee, since his original bowel cancer operation he has always had a problem weeing. He says the only way he can tell he wants a wee is from a funny sensation he gets in his willy, & when he gets it he has to go straight away. He doesn't wee very much during the day but he is up & down all night. His tummy has been a bit swollen but he managed to get his jeans on & done up today so it appears to be going down. I was a bit worried that he might have a blockage somewhere because nothing went into his colostomy bag all the time he was in hospital, but on Friday he had to empty it 5 times which has never happened before, & it seems to be ok now.
He has never been one to express his feelings so I can only imagine what is going through his mind at the moment, I know he never wanted to have chemo ever again after having it in the beginning with his original bowel cancer, but I've told him we need to talk it all through with the chemo specialist when we get our appointment through.
I've got to go back to work tomorrow & I'm not looking forward to it. My daughter, Sara, who Martin took on as his own when she was 4 will be here to look after him. She is now 18. His daughter Kelly, also 18, is going to pop round as well.
As I'm typing this he is fast asleep in his chair, bless him.
Lets see if we get a letter tomorrow with our chemo consultant appt....
FormerMember
What a dreadful ordeal you're all going through. I can't believe that the ward were unaware that your husband had had surgery......it beggars belief. No wonder he just wanted to get back home. At least he is getting proper care and rest with you.
I hope you get the anticipated appointment letter with the oncologist without delay, and that your husband becomes more positive about further treatment if adviced to have further chemo.
Hi Mandy, so glad you got him home, he is a very brave man to sign himself out, but I don't blame him. He is at home with you in his own bed and not being poked and prodded all the time. My husband hated it in hospital even though the nurses and doctors were fabulous. I think they know where they want to be and you have to go with it, home is there sanctuary and they are surrounded by there loved ones which means so much to them. Please keep in touch and let me know how you are getting on, remember we are all here to support you. Love and hugs to you. Annxxxx
Thank you both for your comments. The only letter we got today was a letter from the hospital discharging him. It was dated 11/8 which is really strange as Martin discharged himself late on Thur 13/8.
He went & had his stitches out at our doctor's surgery today, the nurse wants to see him again on Wed morning just to check it over. We've made an appt to speak to our GP on Wed afternoon as well, I want to update him on the recent events & see if he can help us to speed up the next course of action.
I will keep you updated, thank you so much for your support.
A special hug & kiss for you Ann, you are doing great!
