This is me.

2 minute read time.

The strangest thing about having Hodgkin's Lymphoma is that I had no symptoms. Sounds cliche, but I genuinely believed for a good week and a half that they had mixed up my results with someone else's - it wasn't until the PET scan had come back revealing I had tumours in my chest and neck that it actually sunk in. If someone can see them with a special machine then they must be there. Another strange thing is because I have no symptoms, and haven't been suffering massively with any side effects of chemo (as of yet) is that I keep forgetting that I'm ill, and have to remind myself that there are things I can't do because my body is struggling enough as it is without me putting excess pressure on it. I found out in December 2013 that I had Lymphoma, and within 2 weeks my chemotherapy had started. I am a typical twenty year old girl and rather than being upset at the prospect of me vomiting or even dying (which is very unlikely), when I found out I was ill I was hysterical at the thought of losing my hair and at the prospect of gaining weight. It sounds vain and selfish and all of those other nasty things but my hair was beautiful, down to my ribs and incredibly thick - so thick that I used to have to get it thinned at the hairdressers. I am three chemo sessions in and, to my surprise I still have hair on my head, but it is only up to my shoulders and thinning more and more everyday. That's definitely the worst thing I've experienced, the idea that I look ill, even when I don't feel it. When I'm pale, with purple bags under my eyes and hair scattered on the floor around me but feel fine and want to do things like get drunk and eat disgusting food and look pretty but know that I can't. 

Another important note in my story is that I'm living and having treatment away from home. Because I'm a university student I live in a house in Sheffield with four boys and a girl - all of whom still aren't 100% sure how to deal with the fact their friend has cancer. Neither are my parents, who struggle to be over 100 miles away from me when I'm feeling rubbish and know they can't wrap me up in cotton wool and protect me from all of the germs you find in a student house. I'm studying history - my greatest passion in life and couldn't face the prospect of giving that up and succumbing to cancer, giving it everything I had. I am so determined to carry on and do well in my studies and I'm that stubborn and strong willed that I actually think I might be able to get away with it - although I think my aims of getting a first will have to be dropped. 

It sounds ungrateful and horrible again (wow what an amazing image of myself I'm putting out there), but I'm sick of people asking if I'm okay, I'm sick of people telling me I'm brave and I'm strong and that I'm proud and amazing - what else am I supposed to be?

What a sad attempt at a first blog post, so mismatched and out of place. I wish I was Carrie or Hannah and knew how to do this stuff properly.

Anonymous
  • FormerMember
    FormerMember

    Hi Bethany,

    Welcome to the Online Community. I'm really sorry to hear about your diagnosis - it's not surprising that it hasn't really sunk in when you feel so well. It sounds as carrying on at university and keeping some normality in your life are really important to you.

    I hope that it has helped to be able to share things here on the site. As well as blogging, you might find it helpful to join and post in some groups that are relevant to you, to get support from others going through similar experiences. For example, you might be interested in these groups:

    Hodgkin's Lymphoma

    16-24 and Living with Cancer

    Another really good way to get support is to give our team of experts a call on the free Macmillan Support Line (0808 808 0000, Mon-Fri, 9am-8pm). We also have some information for young people over on the main Macmillan website.

    The Teenage Cancer Trust also offers really good online and offline support services for young people (up to the age of 24, despite the name!)

    I hope this helps.

    Take care,

    Priscilla

  • FormerMember
    FormerMember

    Hi Bethany.  Hopefully you've let your university know what's going on - they should try to help you fit work in around chemo, given your circumstances.  See how you get on with the work - remember that in lots of universities it's not uncommon for people to take a later exam if they're ill during the usual exam season, which might be worth considering if it means you're more more likely to get a higher grade.

    It must be horrible to feel that you're looking ill although - unless Sheffield students have unusually healthy lifestyles - being pale and having bags under your eyes probably isn't all that unusual ;)  I guess you can't drink alcohol, or can't drink much, during treatment and will have to stay away from crowds for some of the time, but if you're able to socialise a bit anyway that can be good for keeping your spirits up!