first post on here

1 minute read time.

Hi, I am Julie, my Mum used to call me Loulabell when I was little. My Mum has advanced lung cancer, we have known since the end of March and life has changed irrevocably since her diagnosis. I was moved to join you tonight as my visit with her this evening broke my heart and I don't know how to help her. She was so very low and has been so strong till now. She feels she has no control over her life and emotions, she had chemo last week and was on a high for a few days and now she has sunk like a stone.....Her words, "I don't want to do this any more, it is too hard, I hate not having control over my emotions, I just want to cry all the time"

I feel so useless, I can't make her feel better. I love her so much and life without her is unimaginable. We don't know how long she has...months not years we know that much.

 

I have a loving husband and two beautiful boys aged 9 and 6 and they adore her too. I have a sister who is 42 and she has just had a still birth, a beautiful baby boy who died when she was 39 weeks pregnant.....Mum was so looking forward to the birth. She has 5 grandchildren and 2 great grandchildren at the young age of 65. She was working fulltime till her diagnosis. I am rambling so I will stop for now

xxxxx

Anonymous
  • FormerMember
    FormerMember

    Hi Loulabell,

    My Heart goes out to you at this most distressing time,for you and your Family. Just be there for your Mum when you can, I know its not going to be easy

    But with your Love and Caring at least she will feel at peace with herself. Dont forget to look after yourself with all the worry and Having to look after your family you dont want to make yoursel ill.

    Take care and be safe Big Hugs Love Sarsfieldxxx

    And My thoughts are with your Mum.xx

  • FormerMember
    FormerMember

    hello loulabella , i just want to reach out and give you a hug , your all going through so much, please feel free to pm me anytime if you need a chat , or a shoulder,

    as for your mum feeling low and tired and emotional yes its very prob chemo ,but also all shes going through, but believe me all you need to do is be thier,i lost my hubby in march and he told me it was the being their that really helped and the i love you,s ,so many times a day, the hugs and just to know your not alone, and im pretty sure your already doing that ,

    take care and lots hugs to you all jenni xxxxx

  • FormerMember
    FormerMember

    Hi Julie, sorry your family is going through such a hard time right now. I can understand as I lost my dad 10 weeks ago to this dreadful disease.

    I am wondering if your mum is suffering from depression which is not uncommon with cancer. It might be an idea to have a word with her GP.

    I am so sorry to hear of your sister's baby too. My daughter gave birth  to  a wee girl last February and she passed away 4 days later after being on life support for the whole time so I can relate to how you are all feeling about that too.

    As for the tiredness your mum is feeling. I can assure you that is perfectly normal. She should pick up again quite soon, but chemotherapy is cumulative and the side effects tend to build up over time.

    I hope things improve for you all soon.

    Best wishes, Christine xx

  • FormerMember
    FormerMember

    Thank you for all your replies, Mum has slept for the whole weekend and is much brighter.

    I am looking after myself Sarsfield but seem to pick up bugs which worries me because of Mum, I had a really nasty virus and ended up on anti virals due to a bad case of mouth ulcers, the doc said I was stressed and low. I felt guilty for moaning about it as it was trivial in comparison to Mum's illness. I seem to feel guilty about alot of stuff.

    Thanks for the hug Jenni, I bey as a busy Mum you understand how life is such a juggle right now and I work fulltime. They have been so good about my situation.

    So sorry to hear about your Granddaughter Christine, I hope your daughter is coping ok.

    If I have learnt one thing from all of this it is the value of family, we have always been close but we are pulling together and determined that Mum gets all the love and support she needs. We are building more memories and when she is well having lots of fun.

  • FormerMember
    FormerMember

    Julie,  hope you and your mum are going to have a better week...

    on the note of nicknames...  my name is Julia and my dad still calls me Dooeybelle...  must be a parent child thing...  I treasure it glad you do too...

    best of everything to you all Julia xx