Hi,
Thank you for the messages helping us along, my husband had his consultants appointment on Wednesday and the consultant was shocked by the state of his skeleton, the xray and MRI scan showed he is pitted all over like dead coral and she described it as egg shell delicacy, therefore very open to fracturing, and at least three of his vertebrae have collapsed so this coming Friday the orthopedic consultant will cement them to avoid them continually touching his spinal cord, this is good news and the morphine patches have kicked in although he has a top up. He was admitted that afternoon the consultant refused to let him out until they saw the results of the bone marrow aspiration and MRI scan, he was put on more medicines than I have ever seen in my life and steroids to start the whole process of getting him reading for chemo and then next February we are off to London for stem cell transplant.
We have had an awful few days and I have to say that at last I had a good cry after leaving my husband on Wednesday evening. Now I have to deal with my awful family who refuse to let me access my share of a family business in order to reduce our mortgage and save my husband from worrying about the mortgage. I think I might have to put this into the hands of lawyers, I am amazed how selfish ones own family can be. But as my husband rightly says there's 'Nowt as queer as folk'.
I have read so many stories on the blog page that I feel that mine is minor compared to young people getting this appalling disease and hope that there is some way we can make more and more people aware of simple back ache may not just be back ache.
